Sorry, Havent wrote for a while!!!!

Yes, sorry i haven't wrote for a while as now life has got more busy.

ABI and I have been trying to get Brody ready to start school and we have had some great success with him. Brody is really excited to start as i think as he has been in isolation for so long he really needs that contact with other children and school work to keep his mind active.

We have had also alot of personal things happening which has been keeping us busy, stressed and tried. Never thought trying to get our life back on track would be this hard and bad luck just seems to follow. As my car rolled down GRandma's driveway and hit the brick work, lucky for me it didn't roll down straight and hit into the garage door. But unlucky for me as now i need a to get my car fixed. Another expense, cant believe how much things cost for getting your child ready for school, getting a new life and now this. Grrrr......

We had a clinic visit today, all is good, but we are back on FRiday as Brody needs a Intragram Transfusion. It wasn't a good day for Brody as i think everything is getting him anxious. He threw adult and child size chairs, which one bruised my ankle. He punched me and wouldn't do what the doctor wanted. It was hard!!! BUt thats what happens with Autism children when there life develops changes. This is why i try and keep him in routine every day. So i am looking forward to get school underway and on the routine track. As it is so much hard work, and sometimes as Bill and I found out, you finally get Brody settled and going great and then something would come in and make our job even more harder again, and sometimes it can take just a day to wreck everything for a week of destructive behaviour.

Once Brody is settled into school and things are back in order, nothing will change our routine again, as i have worked so dam hard, by myself for the past 5 years to get Brody where he is today, and Brody and I both deserve the best in life.

Clinic check up!!!

Its been a great chrissy and New Year!! Hope you all enjoyed yourselfs???

Brody is doing really well at the moment, he has started a new program with ABI to get him ready for school, he is so excitied to start school and i think he will enjoy having friends to play with.

We went to our clinic check up during the week, and i ask the question about his chances now that he is in remission. The doctors response was that its great he made it to the 6 months, but the cancer is still there! She explained that cause of Brody's high risk, most kids like Brody the cancer might come back in the first year and then some come back in the 2nd year, so if he makes it over the 2 years we will be partying then!!!! Its not much help, but we have to stay positive that it will never come back!!!

Brody's nose tube come out when he was sick from eating to much, so i pulled it ut of his nose this time and gave him the option to take meds with his mouth or go back and get another nose tube? He decide to take the meds, he is doing really well at the moment, but tries a few things, such as spit it into his drink! Grrrrr......

The doc's have plan the next bone marrow for next month. We are still waiting for results on his isolation tests and start vaccines. They are also going to keep his chest cords in as long as they can.

So at this point of time its normal rountine life at GRandma's house and waiting and waiting for results.

Merry Christmas and happy New year!!!

Wednesday we went for our normally weekly check up and also a Intragram transfusion. We also got the best christmas present anyone could ask for. The doctors have now told us that Brody's cancer is in remission!!!!!!!! Its not a cure and he is still at a very high risk of it coming back. But if that ever happens, we will deal with it then but for now, we are all on cloud nine.

We will still have bone marrow tests and clinic check ups and if he gets any infections he will need to stay in hospital but its a part of the course. Brody is still in isolation stage and they will do another test for that in Jan, but at this point he could be still in isolation until after march, as his immune system is not so good!

Brody and I would like to wish you all a Merry Christmas and a Happy New year!!!!! xoxo Sorry still having trouble with chrissy photos!!!

Bone Marrow and chrissy party Week!!!

Another big week, we had our last lesson for with the school teacher and the lovely ABI come and did great work with Brody.

Bone Marrow, went all well, but was a hard and tiring day, as we were there for 6 hours. We wont know results for another 10 days, but keeping my fingers crossed all is well.

We also had the clinic chrissy Party, were we meet up with the doctors, nurses and some our friends we made in hospital. Its was a great day. Brody got his face painted, got to sit on Santas knee and had some great food. Thank you so much for all the wonderful people that helped make this day great for all the children in clinic!!!

Brody is doing really well, we cant believe we have had a bit of a normal life for so long now, Its been great to be a home. Although we miss our wonderful friends on Variety Ward. You all mean the world to us, thank you. xoxoxo

Otherwise everything is still the normal routine, with heaps of meds morning and night, school work, games, and TV. Brody is looking forward to the Domenic and Ethan coming in the hoildays while David is at work.

We wish you all a Merry Christmas and Happy New YEar!!!!!!!! LOve you alll xoxoxo
Having trouble with downloading photos, but they will be up in next couple of days.

Wow, what a week!!!

Last Friday, Brody, Grandpa and i got to go to the V8 Supercars, thanks to a special friend Mr Sargent, from Penguin Publishers. Since Brody is still in isolation, we got to have our own private tour and Breaky with Craig Lowndes. We also got to meet some other drivers. Thanks to Ford and Holden for all the wonderful prezzies that Brody got. Brody had a ball and wanted to go back again the next day. lol

We have had the teachers visit to do Brody's school work.

We have been also getting ready for chrissy, as Brody helped put the tree up. He loved putting the Sonya the angel up onto of the tree.

Today we went for his normal check up, everything was fine. He's counts are a bit low, so hoping he dosen't get anything, as today he was a little bit off.

Next week is the next bone Marrow test and clinic chrissy party, so another big week for us.

Back for our weekly Clinic Visit!!

Everything is still going really well, Brody is still eating lots and now weighs 25.4kg and is very active again. He is also such a big boy now, that i am not aloud to do anything, he has to do it himself! lol

Our lovely Doctors will never learn, even if you have told them heaps of times, not to call Brody anything else excepted for Brody. As he called Brody a baby, as he was pretending to play with Brody. But its the worse name you could call him. Lets just say i think the doctor will now never say it again!!! lol

The doctors have now stopped the steroids, Yeah!!!!! As i ask them too, Brody has just had too many effects from them.

Brody is having so much fun at home and loves chasing everyone around the house, even Grandma!! He is looking forward to big school and our big party when he can come out of isolation.

Hospital Party Day, and Clinic Intragam

Went to hospital on the Friday for Brody's Intragam. We ended up having a great day, as it was Party day for the hospital. Brody got to see my favourite superheros and Santa.

Brody and i also saw our Wonderful friends from Variety Ward. They might not know it but they all really mean alot to us, as they were always there for us, even when i had my bad days or bored them to death with my long talks at night. LOve you all xox

His Intragam went well, i did get to see the doctor and found out GREAT NEWS!!! Brody's cancer has gone down again by one. So we are still hoping it will keep going down. Next Bone Marrow will be in December.

Brody has been great, we have start halved the steroids now, so hopefully that will kick in and he will have less side effects.

Brody is back to clinic on next week, for check up.