Clinic check up!

We went off to the hospital fully prepared for waiting and prepared with all the visuals, to explain to Brody what the doctor would be doing. Could not believe it, today was the first time we didn't have to wait to long. Brody got his bloods tested, and then only waited for a little bit to see the doctor. In the doctors i show Brody what was going to happen, as he asked several times about getting a sharpie. He seem to understand and coloured in and played his game while i was talking to the doctor, but as soon as the doctor wanted to check him over, the hitting , kicking and yelling started. Tried to explain again and even bribe him, but i think because she was another new doctor that we have never met, he just wasn't going to do anything for her. It was hard, but we got through it, just like we do every time we go.

Brody's results were low counts, but not low enough for any transfusions. We need to go back on Monday to check them again. Then also maybe next Thursday we will be back in for another 6 day stay. Brody then got his dressing changed, which he took it off all by himself, and then went crazy as he hates the feeling of the cold sponge cleaning it.

The day finished within 2 and half hours, big difference from 5 hour visits for the same thing! We then went home and on the way got Brody Mac Donald's as i had promised it when he was seeing the doctor. He is still eating like a horse, and still wants his pizza and Garlic bread.

Brody and i then had our nanny nap and when we woke we did our activities with Grandma, and Brody did really really well. I was so proud of him. Thank you to ABI, for all there help. xoxo

Our week!

Our week has been the normal week of staying inside at Grandma's watching TV, washing, playing games, nanny naps, worrying and organizing finances. Also we had the lovely crew from ABI come on Monday, Tuesday and Wednesday. They have done so much already to help Brody with his behaviour problems, helping him with school work and helping him to accept things.



Brody has change so much, he is not that hyperactive child he was before this experience.Brody used to run around the farm chasing the dog and chickens. Brody could not sit at a table to do work or play with any toys he had. Brody would jump from one activity to the next within a few minutes. Brody also had difficulties at his Day care and was also alot of hard work at all his extended programs he was attending. But now he has calmed down so much to the extent he sits and colours in and sits at a table to do some activities. Brody doesn't like to go outside and run around the back yard and has problems with any physical activities. I believe the chemo has calmed him down alot and with the help from ABI we are seeing a different Brody. I wonder how he will be when his treatment is all finished? Will he go back to that hyperactive child or will he stay settled. Either way, I will love my son every day and continue to help him in every way, as i know that we, like any parent with a Autism child, will have these battles for life.



Friday is check up day, not looking forward to it! Rather be at the beach swimming with Brody and making sand castles.

My Little Man!

Back Home Again

Brody's levels went down low enough for us to get out of jail and go home again to Grandma's. But before we left, Chris from ABI came and did lots of fun things with us. Thanks Chris

All Brody wanted to do was wear his superman outfit, so we had to get his cords taken off. But first i told the nurses to keep him attached to the machine, so then i could take out the first load of stuff to the car. I know Brody will stay in his bed and watch a movie while he is attached. So i did take the first load down and booked our appointment for Friday. The nurses then took his cords off and we put his superman outfit on. He then ran through the halls of the hospital pretending to be superman. It was funny to see, but very stressful for me, as i was trying to keep up with him, while carrying the last load off stuff. Thank god, Uncle David and Ethan were at the hospital for Ethan's appointment and stopped Brody before he ran off outside.

Brody has still got a running nose and a cough, he sounds like he is starting to loose his voice. But no temps, so they think he will be ok. Cross my fingers we don't go back in with high temps again like last time he had this chemo. Otherwise we are back in this Friday for check up.

Still in Hospital!

Today Brody's levels were still to high to go home, but low enough to go home tomorrow. Hopefully!!!

We had a lovely visit from a wonderful friend that has been with us and helped us so much. We thank you Chantelle for everything. xoxox

Brody has been writing letters all day! and has had so much fun playing games.

Brody is the Bravest Boy!

Yesterday Brody had yet another Lumber puncture and a Bone Marrow operation. He has had about 10 of these little operations already. But yesterday was one of the hardest, as for the first time, he woke up with tears running down his face and complaining he was sore. Because of Brody's Autism, he doesn't feel pain much. Therefore when he cries and says he is sore you really know it hurts! My poor little boy, its so hard not to cry yourself when you see your child in pain. The nurses gave him a panadol, which helped him alot.
After the operation he was also sick twice and did not do much except watch his movies. He then felt better by the afternoon and ate 6 pieces of toast with Honey. Remarkable!!! Only Brody could do this!

Today, The day started off with Brody having to be Brave one more time, as he needed a nose test done. Lucky Brody's Nan and Great Grandma come to visit and they had prezzies for him after the horrible nose test! He hates this so much! Brody was so happy to get a video and his superman outfit.

Then we went for a walk to the starlight room, and saw some Home Away stars, but it was just to noises for Brody and he wanted to go. We come back and had a sleep, well Brody slept as the machines went off twice and my mum rang me, so i didnt get much sleep again.

One of the several doctors that work here, talked about in the next four weeks we will be testing Brody and getting him ready for his transplant. I still know nothing but will find out more in the next lot of weeks when we have the transplant meeting.


WARNING!!!! COULD BE STRESSFUL TO WATCH!

Hospital Time Again

Yesterday, Jill and Eleanor came for lots of fun. We also had Domenic and Ethan to help us make it lots of fun. The Three boys did really well with all the activities as Brody has now got the number one and knows what groups are transport, clothes, animals and furtniure. Brody has really started to improve, thanks to JIll. xoxo

We also sat around all day waiting to find out if the hospital had a bed for us. By 2.30 pm we finally found out that there was no bed. What a day, it turn out to be! It wasn't a good day for me at all!!!! Which i don't want to talk about!

Today we had to wait around all morning again and Lucky for me Dave could drop Me and Brody off at the hospital. Thanks Dave! LOve ya!
We waited around for 4 hours before we got our room. so we are now sitting back and resting. They have started Fluids and chemo tonite. Brody also got a Easter Show bag of a nurse, in our ward as they put it away for Brody when the show lady come to visit the hospital! It was a nice surprise!!
Tomorrow is Bone Marrow and Lumber Puncher as well as more chemo. Good Nite, Time to rest!! xoxoxox