Happy Birthday Domenic and Ethan!!!

Wow, we had a really great day. AS Grandma and grandpa looked after Dom and Ethan today for school holidays and it also was their Birthday.

We all had a great time, cooking smiley face cakes, playing with their DS and DSI's, playing with the fighting Zuzu toys. IT was a action packed day and Brody flaked out early.

So Happy Birthday Domenic and EThan, me and Brody wish you all the best and hope you have a good party on the weekend. xoxoxo

Brody is still going really well, eating lots and has started to swell from the steroids. We are still in isolation stage where we cant mix or go to public places, so we get a bit crazy.
Brody is also having other effects from the steroids as he is getting frustrated and angry and then very emotional, so hopefully this new medication will work so he can stop the steroids on Monday.

I have done so much since i have come back home, as i had to fix up all my clothes and unpack and clean all our stuff, just so we could get into our rooms and sleep. Brody sleeps with me again, so still not much sleep for me and last nite he wet the bed. As he did the biggest wee, and fill up all his nappy. Must be all that chicken soup!
I am really just wishing for a day of sleep, where no one rings, no one visits and there is nothing to do! IN my dreams!! lol

Well hope you all have a good weekend. Be back on Monday after our clinic appointment. xoxo

Home sweet Home

Today the doctors come in and told after Brody has his protein transfusion we could go home and be discharged. Yeah!!!

They stopped the steroids last night, but a little bit of the rash appeared again this morning, so they have put him back on the steroids and a new medication that will help the GVHD and the cancer. So hopefully we wont need to go back for a while.

Brody is doing really well, as he eats lots of Grandma's soups. He is so excited we are back home and out of hospital, as 14 weeks with only 6 days off is a very long time.

WE are back on Monday for check up and get results from biopsy as the doctor's didn't have them yet.

So looking forward to a week of peace and normal life. JUst want my bed!!!

Today they have stopped the TPN and nose feeds as Brody is eating lots of soup and bread rolls. The steroids have clear his rash and made his poo firmer. So hopefully this means we get to go home for a while.

They will be taking him of the steroids again, so we might be only out for a little while and then back in again.

Results from biopsy hopefully will come tomorrow and Brody will also have a protein transfusion.

Thank you to all my family and friends for all my birthday gifts, comments and thoughts. LOve you all xoxoxoxo

Happy Birthday!!!

Today started with Brody wanting chicken soup and saying he is hungry all day. AS his biopsy was in the afternoon, so it was very stressful, trying to help him forget about food. Its a bit unfair for children, as Brody is on steroids which make him hungry, but he cant eat until nite time.

All went well, results will be in a few days, he's nose tube come out, but i am so glad that he was still asleep, when they put it back in. Other wise we would of had problems. So nose tube back in and feeds going through it again. Still on TPN, but might come off it in a couple of days. Best part now he is on the steroids the rash is clear up and no more runny poo's. Hopefully the GVHD got enough time to kill of some cancer cells.

Today was a my Birthday and the lovely nurses of Variety made me a wonderful cake and sang Happy Birthday to me. I got some lovely presents from a wonderful mother and friend in the ward. Grandma and Grandpa also brought us a Birthday cake. Sooo we had lots of cake today.

Two Birthdays in a row in hospital, whats going to happen next year???????

Thank you to all my Friends and family for all your wishes for my birthday. Thanks LOve you all. xoxoxoxoxo

October long weekend!!

As you all know not much happens over the weekend, and long weekends are worse.
Brody has been eating Grandma's chicken soup, for breakfast, lunch and dinner. That's all he wants.

He is doing really well at the moment, as the put him back on the steroids, so he is cheeky, active and a bit emotional. He still gets very tired by the afternoons and goes to bed early. Wish i could do the same.

Tomorrow is our big day, when he has his bowel biopsy and a camera done the throat. We wont know results for a couple of days.

Pet scan result

Brody has been very perky this morning and then the doctor's told us we could have a gate pass this afternoon, so then he has been on a emotional roller coaster as he hates waiting. But we had to wait to slowly take off the TPN.

The doctor's have told us that the results from the PET scan showed two spots in the bowel that are red, but they are not 100% sure, so they are going to do a bowel biopsy on Tuesday. Happy Birthday to me!!

So we are still playing the waiting game, but they are going to start on steroids again for his rash on the skin, but waiting for results to see what medications to use for the gut and bowel.

So will be in here for a while longer until its all worked out and he is alright to go home. I am so glad that i have the best nurses that keep me going and on my toes and wonderful friends that i have made here.

Also i am so lucky to have all my friends and family for their support as you all have thought of me. LOve you all xoxo

PET Scan

This morning we had to starve ourselves so we would be ready for the PET scan. Brody had to get off the TPN very slowly and just be on fluids.

He was a bit grumpy all morning, and had a obsession with cutting out things with paper, which for the first time he made rectangle shapes and a square and made a robot. We did this once before with a stencil, the shapes were already marked on the paper. He is so amazing to remember what shapes he needed and to cut it out with no marks on the paper. Cant believe it!!

We left for the PET scan at 12.35pm and the porter pushed Brody's bed over to the adult hospital, as they don't have a PET scan machine in the kids hospital. The porter dropped us off at the wrong spot, so the nurse and i had to push the bed to the right place. The poor nurse will be black and blue tonight as the bed kept pushing her into the wall. Need L's to drive a bed!!!

Brody and i stay in a little room where they put some special dye into him, i had to stand and sit behind a metal shield, as the dye had radiation in it, and could come off Brody to me.

We had to wait 45 minutes for the dye to go through and then they put him to sleep.

I then had to carry him into the room with the machine, where they tapped him up, so he cant fall off or move. The scan took about half hour. Brody had a good sleep, until 5 pm.

This afternoon he woke up very perky and ate some of grandma's chicken soup with toast. Maybe he should of had the scan earlier, to get him to eat. LOL

Hopefully we get the results tomorrow.