Clinic Visit and teacher Visit!!

Brody and i went off to clinic today thinking he will need platelets. We got there and did his bloods and again waited and waited. The doctors had forgot we were booked in today. Then all that happened was we will see you Friday. It was a waste of time. Brody's platelets were still the same as MOnday, so didn't need them today. Grrrr....

The doctors just dont understand how hard it is to keep going back and forwards to hospital. Half the time Brody wont get in the car and then we have to wait a long time with Brody not understanding what waiting is about. Its not easy for any child!

We got back home and had a meeting with the teacher, that chooses what school Brody will attend next year. We fill out all the paper work and find out what support class he will go into and school. Funny thing, she told us Jasper RD public school could be one of the schools. Its funny as thats the school i went to and Luke started at when he was little.

So back at clinic on FRiday, and hopefully we will get the results.

Bone Marrow OP!

Brody and i went of to clinic this morning, nice an early as we had to be there by 7.30am. We then waited and waited and then saw the doctor.

Doctor told us we were right to do the bone marrow op today, but had to come back on Wednesday for platelet transfusion.

Brody went into to the operation room and had the bone marrow and i went out for a smoke, as we ended up waiting 3 hrs, and when Brody is hungry and still on steroids he gets really angry. AS he was screaming and kicking me. It was a hard morning for us both.

Every thing went well, hopefully little results will be back on Wednesday and the major results will be back at the end of the week or next week.

Brody is still going really well, as he is eating lots and his energy levels are starting to come back. We also popped in and saw our lovely nurses at Variety. A huge Thank you to them all for having so much time for us and helping us in all the ways they can. WE love you all. xoxo

Levels!!!

We again went to the clinic today to check Brody's blood levels. While we waited in the hall way, the two doctor clowns come and did lots of funny things. Brody got it photo taken with them.

We also popped up to see our friends from Variety Ward. A happy Birthday to Sarah and a huge Congratulations to Matt for popping the question to his girlfriend. Wonderful news!!!

The doctor's checked his bloods and said they were fine and hopefully we can start his new medication again next week. Bone Marrow test on Monday. I am feeling a little bit nervous but praying for the best result, as he has come so far already. I also cant let it affect me, as there will be many of bone marrow tests to come, where the cancer could get worse. Just take each day as it comes.

Not much happening on the weekend so next blog will be after MOnday. Thanks again to all my family and friends. xoxoxo

Levels to high!!

Today was a normal day at home, but i did get a chance to pop up to the bank and shop to get a few things. So not used to going to the shops.

The doctor rang me today, to tell me to stop the new medications as Brody's levels were to high from it and we have to go to clinic on Friday to check levels and him out to make sure he will be alright over the weekend.

Brody otherwise is fine, he kept me awake all night last night, as he woke up and couldn't go back to sleep. He is eating chicken soup and sometimes other different types of food.

A Huge Thank you to my Aunty Dianne and Uncle Peter for there wonderful gift. xoxox
Thank you to everyone that has help us, as now my Bills have gone and your wonderful gifts will help us get through the next year. We are very grateful and thank you all from the bottom of our hearts. xoxoxo

Clinic Check up!!

Nothing much to report, as Brody is doing really well at the moment. (knock on wood). He is eating lots and enjoying staying at home.

We did blood tests today, which is all good, Doctors are slowly taking him off the steroids and still checking levels for the new medications.

Monday is the next bone marrow test, and results will hopefully be back on the Friday when we visit on the Friday.

The school teacher come out on Tuesday and hopefully we will get to start thinking about where to enrol Brody for next year. ABI will also be starting next week. So its all full swing again back at home.

Clinic Visit

The weekend was great to be back home, but we were just so tired out after getting our rooms back in order just to sleep in them.

Today we went to the clinic early, as the doctor rang me on the weekend and said Brody had to have the poo medication again. So we got there early and of course they changed their minds again. Brody didn't need it, we just have to continue with giving samples in each week.

The biopsy results were normal. They told us he had GVHD of the gut but its been treated and didn't do any damage to the gut. So great news. The tested his bloods and they were all good too.

We have to go back on Wednesday for a check up, but at this stage everything is going great. Couple more weeks and we will have the bone marrow test again.

Brody is really enjoying beaning home and thanks to all my wonderful friends, i have updated his DS to a DSIXL, which he loves and plays with it all the time. Thank you Chantelle and the Autism group as its been the best present, to keep him entrained.

We all so popped in to our lovely ward and said hello to the beautiful nurses and some mums we know. It was good to be a visitor, even though we do miss them too. YOu all Rock!!! xoxo

Happy Birthday Domenic and Ethan!!!

Wow, we had a really great day. AS Grandma and grandpa looked after Dom and Ethan today for school holidays and it also was their Birthday.

We all had a great time, cooking smiley face cakes, playing with their DS and DSI's, playing with the fighting Zuzu toys. IT was a action packed day and Brody flaked out early.

So Happy Birthday Domenic and EThan, me and Brody wish you all the best and hope you have a good party on the weekend. xoxoxo

Brody is still going really well, eating lots and has started to swell from the steroids. We are still in isolation stage where we cant mix or go to public places, so we get a bit crazy.
Brody is also having other effects from the steroids as he is getting frustrated and angry and then very emotional, so hopefully this new medication will work so he can stop the steroids on Monday.

I have done so much since i have come back home, as i had to fix up all my clothes and unpack and clean all our stuff, just so we could get into our rooms and sleep. Brody sleeps with me again, so still not much sleep for me and last nite he wet the bed. As he did the biggest wee, and fill up all his nappy. Must be all that chicken soup!
I am really just wishing for a day of sleep, where no one rings, no one visits and there is nothing to do! IN my dreams!! lol

Well hope you all have a good weekend. Be back on Monday after our clinic appointment. xoxo