Sad Day!

Today Brody was much better, as he was eating more and running around like a tassie devil. Starting to see the Austium even more as he is babbling more to himself again and just doing more things like when he was 3. I am worried that this is sending him backwards and undoing all our work that we have already done with him.Think it could be because of how he feels or the medicines.

We also had a sad day today, as Luke went back home to Queensland. Brody and i were in tears when Grandma and Grandpa drove off with him. We will miss him so much.

Today the community nurse contacted me and she will be visiting us on Friday. She will be coming to Grandmas House when i need her. Just in case i need help with the injections in his leg or any thing else. Its good to know we have back up.

Brody was also so excited as he got a letter from Featherdale Wildlife Park today, as the staff paid for him to sponsor a Red Kangaroo. So he recieved a cerificate, free pass and pictures of his kangaroo. A big thank you to them.

Brody and i had a big sleep, as we slept for about 3hours, think we both needed it. In late afternoon we did some activties and watch DVD's.
Hospital Tommorrow.

Home Sweet Home!

This morning Brody did not feel at all well, he would not even eat his favourite foods. We had a lot of nurses and young doctors come in to visit us, to see how he was and to see if he would be ok to go home. We also spoke to the people that are going to begin the search for a donor. They will first search babies cord blood, then Australian Adults and then if no matches they will search overseas. This process may take months to find a match, so thats why they have to start straight away.
We sat around waiting and waiting to find out if we could go home. They finally said yes, but by the time we collected injections, meds, did paper work and book our next visit, we got out at 1.30pm.
The nurses unpluged Brody from his machine, and that was it he just run off down the hall and out the ward, we me running after him. He become so active and hypo, you wont have thought it was the same child from this morning. After several runs through the wards, grandma and Luke come to pick us up. Brody again was so excited as his cousins Domenic and Ethan were at grandmas to say hello and goodbye to Luke. He had a fun time with them, it was good to see him laughing and beening a child again.
I gave brody his injection in the leg and his daily tablets before the busy boy went straight to sleep. Goodnight and sweet dreams.

Our First Post!

Our First Post!

Today Brody is a bit quiet and feels a bit sick, as he is not eating much and the smell of food nearly makes him vomit. His blood pressure is very low when he has a day sleep, but otherwise it picks up again when he is awake. He is still attached to fluids and will be all day. One lot of chemo is finished but will be starting daily injections tommorrow. I will be again giving him these injection in the leg. Brody has been happy watching Power Puff girls on DVD and we got to go for a quick walk outside. We had lots of people in to see us today, as the head nurse come in and the social worker, Brody put on a full display of his loud voice and throwing things.

Also we would like to Thank Christine and Nicole for there wonderful support in helping us raise money. See newspaper article and slave for a day flyer. Thank you again to everyone who is helping us make this experience that little bit easier. Love you all. xxxxx