Weekend news!!

The weekend was full of normal stuff and Bill come down for a visit which was good to have some family time. We didnt do much just stayed around the house playing and watching TV.

We did take Brody's to the drive Ins for the first time, as we rugged up really warm, took our own food and drinks and had a good time. We saw Sherk 4, it was a great movie, although Brody kept saying he didnt like Sherk, he likes Ironman. He went alright, but jumped from the front of the car to the back boot of the car a couple of hundred times. At least we got out and did something different with out mixing with people. As this is the time that so much is going around and we dont want Brody to get anything as it will delay transplant.

I try not to think about the future, but it makes me all confused as i worry about other problems Brody might have and his education, i wont be able to work for a least another year away, Support from others. Its a thing i really need to think about and weigh up my opitions as i am torn between moving back up to forster or staying in Sydney and what is best for me and Brody. I try not to think about it all yet as the transplant is my main focus for now. All this thinking gets me all depressed and sad.

Hearing test!!

Today we went to the hospital to get a script for meds and waited an hour and a half to just see a doctor. Then the doctor said we could have just rang and come in and picked up the script!! But i told the lady at the desk it was just for a script and we still had to wait. What a joke!!!! Really thinking its because the doctors don't want to see Brody because of his behaviour. As they find it to hard, so they pass him on and hope that someone else see's him.

We then went to the hearing department and all his hearing was 100%, which i knew from a past hearing test when i was trying to find out what was wrong with him. So good news that the chemo hasn't effect his ears.

Brody never talks to strangers, but today decided to ask a lady with blonde hair and she was all dress up with her high boots on, her name. What a flirt my child is turning out to be!!! LOL.

I heard from Luke and he is doing ok now, his eyes don't hurt anymore and he just has a mark on his arm. I am so glad it wasn't too bad. Luke is doing his exams at the moment and is having fun with his friends.

We will be having a quite weekend at home with Bill and Grandma and Grandpa, then back to all the weekly stuff of ABI and Hospital visits Monday and Tuesday. So keep a look out for next weeks blog to find out all the gossip on preparing Brody for transplant and the transplant it self.

Hope everyone has a good weekend!!! xoxox

At last!!!

Normal routine work with Brody today and then just playing and watching TV. The weather here is very cold and light showers today, so we couldn't even go out the back for a run.

Hospital rang me today and Brody is going to have another CT scan next week and i will be meeting with the transplant team on MOnday to find out the in's and out's. Yeah!!!! I cant wait to find out what will be happen so i can start preparing him for it. So keep watching for next MOndays or Tuesdays blog entry for more information.

Luke will be having some of his tests up at the children's hospital at Brisbane, so wont need to come down this time, i am a bit sad about it as would have loved to seen him again. But cant wait till we see him again next time.

Tomorrow Bill is coming down for the weekend, as Brody cant wait to see him. Its been very hard not having our little family together like it used to be, as Bill still has to work and it costs alot to travel in his car so he only comes every second weekend. He stays at his sister's house while he is down here, so we don't get much time together. So it will be good to see him again.

Today we had Chris again from Autism behaviour intervention to do some behaviour work with Brody. Before ABI started i could not get Brody to do any type of school work or even get him to sit at a table. But now he is doing so well, sitting at the table and completing some school work. They also help with Hospital procurers too, like putting a nose tube on his face or in his nose, Brody now lets us put the cord in his nose and taped on his face. Which will help him so much when it comes to having to have one on his face.

ABI will not be coming after a couple of weeks, but we have now received emergency service again for after transplant to help Brody transition back into normal life, which is going to be a great help, as he will need to be toilet trained, socialized back in with children and follow new routines of home. Thank you so much to ABI for all there help.xoxox

Brody face isn't so red today so what ever it was, it seems to be going. He has ran around the house playing chasing and hide-n-seek with us. He is a very wild boy and keeping me on my toes. He also packed his back pack and told me he was going to Nabaic. He then went out the front door and up the drive. I feel so sorry for him as he really wants to have his life back at Nabaic. He misses his chickens, dog, horse and his spaceship bedroom. I too, wish that we have a life as it gets very hard. Unless you have experiences this you would never know how hard it is.

Luke is doing ok, he is laughing about his accident yesterday and now riding his bike again. So i don't think it was to bad, but it still would of hurt. Ouch!!!!

Worried!!!

Brody had his behaviour activities to do today with Chris from ABI. He went really well this morning, until right at the end where he had to go into timeout for hitting. When Chris was leaving he told him he will see him tomorrow and that he loved him. How cute!!!

We also had Dianne, the nurse from the hospital come in and flush Brody's cords to give them a weekly clean. She was in and out with no worries. It was so much better than going in for hours and waiting around.

One of the doctor's rang us to tell me to increase his anti -biotic as his anti-biotic level was too low. But still no news into whats happening to get ready for transplant. On Friday we will be going in for a hearing test and to get some more meds, so hopefully i will find out something or i will chase it up, as i will go see the main doctor and let her know i haven't heard anything yet.

Brody is doing really well that he has become hypo like he used to be and eating lots of food. He has had a red face and ears the last couple of days, but his temperature has been fine and there is no other signs of things happening, so i don't know why he has a red face. Grandma said that sometimes meds can make you have a red face, so i am hoping that is what it is.

Oh! I am now worried about Luke as he burnt himself and went to hospital today. He is ok and a friend is staying with him. He has to go back tomorrow to checked out but he should be ok. How i wish he would come back home. Brody and i miss him badly.

Long Weekend!!!

Brody is doing really well as his levels are good and has started to become the old Brody. His nose hasn't been so runny this week and he is so much more active again. I haven't had him outside in this cold air as winter is the worse time for a transplant as there are so many more colds/flu and infections going around. This is the last thing we need as if Brody gets anything it will delay transplant again.

We were thinking of going back to Nabaic this weekend to spend some special time with Bill and Brody keeps asking to go back home, but poor Bill got a ear and chest infection and its just to cold up there to take Brody out. We will have many weekends to go back home after all this so another week away want hurt. Hopefully Bill gets better soon, as Brody wants pizza.

So for the rest of the weekend we are staying in and playing lots of games, sewing, normal routine work (as that happens every day), cooking, Wii, Ds and lots of indoor fun things. Hope everyone else has a great weekend.

Tribute to Sonya

Happy Birthday!!!!! 11/6/70 to 14/7/2008

Today has been a very sad day, as we celebrate Brody's Aunty Sonya's 40th Birthday. She was a wonderful sister to me and a caring Aunty to Brody and LUke. Sonya had just built a wonderful life with her husband David and twin boys Domenic and Ethan, when her life was struck down with a rare cancer. She tried to fight right to the end. We have so many good memories, but one memory that will live in my mind forever is when i nearly lost her 2 days before she passed. As she had what looked like a fit on me, and i had to hold her up while yelling out to the nurses. They told me to call the family, as i believe we did lose her that day, but she came back after getting oxygen. It was the most scary thing i have every been through.

Sonya will be sadly missed by all, and we love her so much, she will always be in our hearts xxxxx