Emotional Day!

Back at the hospital at 8.30. Brody didnt want to go, cried nearly all the way, and i had to pull him from the car. I too was not in the mood to go either. We went to clinic and waited. The nurse called him to take his bloods, every thing went as normal.

We then had to go to nuclear medicine where we waited again, for Brody to have a kidney test. I tried to explain to Brody what was going to happen but they did it different to what John Hunter did. They called us in and Brody had to have a sharpie in his hand. Again i had to sit on top of him and hold him down while two nurses did the sharpie and add the liquid into his veins. It was really hard for me today and i had a little cry. Then we had to waited around for 2 hours before they did the next part.
We went out to the hospital playground, as it was a cooler day and only 1 other child there. We went back and they took blood out of his cords. They told us to come back in an hours time. So we went back to the clinic and they told us to wait to see the doctor. Time was ticking and we had to go back to nuclear med, so we told the lady and went back, waited and then they did bloods again, and told us to come back in an hour. My face just dropped, i said i have to come back again. They said yes. Brody at this stage was getting really restless and starting to muck up. We went back to clinic and they again told us to wait. Brody played with the playstations, ate popcorn and rice crackers and watched TV. He was starting to get tired. He ran off twice, trying to go home to grandma's. At this stage my level of patience was wearing very very thin. Again time ticked on and No doc. We again went back to do the last bloods. Come back to clinic and waited again.
Finally the doc called us, spent 5 mins with us and told us to go and wait to be admitted into hospital. The lady at the desk said we could go home and come back at 7.30pm. So i jumped at the chance and left. We got home after 4.00pm and Brody and i crushed out for 2 hours. Grandma had cook us dinner and then left to go back to hospital.

Arrived at hospital, still very tired and patience still very thin. We saw the nurses at the desk and they told us the room number. We got there and we had a shared room. Which is ok. but not for Brody. As remember he dosent like strangers and the ward and nurses were all new to him as well. I also pay private health to cover for him to have a private room. That was the last straw, i broke down in tears and said this wont do, as i have had a bad day and dont need Brody to get more restless, Brody and i both need our rest. The nurse then tried to help us get our own room. I dont mind sharing but as some of you would know its harder to deal with strangers and keep them settled when other people are around.

Still i have nurses saying to me all kids do that! NO! ALL KIDS DONT DO THAT!! I have had another child and worked in child care for 17 years, plus have a masters in early childhood teaching. ALL KIDS DO NOT DO THAT! they might do it once or twice but not all the time and not to the same degree. You can compermise with other children, Autism kids cant. I then gave them Chantelle's - Brody's story to read. Thanks again Chantelle! Please check out Special stories for special children in the link on the side page. Thanks.