Its been another hard week as giving Brody eye drops every 4 hours takes alot of work. I think by the end of the week he might just get used to it but then it will stop until next time he needs them. Its also very draining as we get woken up for the drops and normal checks. I turned every thing off today and tried to get a sleep, but no someone come in and woke me up, but a least Brody got a good sleep.
Brody developed a spotted rash yesterday, the doctor thinks it could be a viral infection but she will check him out again tomorrow. Other wise Brody is doing really well, he loves to eat Garlic bread for lunch and dinner.
Also seeing social worker tomorrow to check up about Luke's trip down for his tests. Brody and I cant wait to see him, as it's been such a long time and we miss him so much. It should be in the next two weeks, yeh!!!!!
Haven't learnt any new about the transplant, and i am starting to wonder what happens after Saturday, as that is our last day of chemo. So still so many questions to be answered. I say next week we will have to come in and check his bloods, and i say they will give him a week or so to recover. Last time he had this chemo he had high temps and we spent two weeks in hospital, so could turn out the same. Who knows, you cant plan or do any thing!!!
Feeling very worried and scared about transplant, as i have no idea how Brody will cope being that sick, that he needs a nose tube and will have mouth sores etc. He has done really well to cope with everything now, but this is going to be totally different. The Autism hides the way he feels, the only way i know if he coming down with something is he gets more aggressive, but he is still the same old Hyperactive child he normally is. Therefore the transplant will be hard as i don't think it will be to good if he is still hyperactive as his body will need to rest to recover.
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