This morning we had Autism behaviour intervention come and help Brody get used to things he will need to have before transplant. We are also meeting with the play therapists from the hospital to help us too, as ABI cant be there when he is in isolation. Which is looking to be up to 8 weeks or more, depending how Brody goes.
The music therapist also come in and did some great jamming with Brody, as his favourite song is We will, We will Rock You!! He had lots of fun!
Brody also had surprise mouth swob's and visits every two hours from the nurses, to check his routine temps and blood pressure.
Grandma and Grandpa brought Luke in for his tests, which is personal business between doctor and Luke. As he is now a adult and can make his own decisions. So all i can tell you is he was gone for over 2 hours and had a blood test. He will have to come down again at the end of the month for more tests and then for transplant mid June, Hopefully!!!
Then we had a surprise visit from the brain doctor as they have booked Brody in for a EEG tomorrow, because of his seizure disorder and they want to check him out before transplant. So I have to not let him sleep so much tonight, so he is tired for the test, as he needs to be asleep. Grrrrrr....
Nurse then come in at 3.45pm and told us we had a appointment at the eye clinic for Brody at 4.10pm, WT! we then sat at the clinic for 2 hours waiting. The doctor had a hard time as Brody was tired and sore by this time as he had no day sleep. Brody also found it hard as he couldn't understand what the doctor really wanted him to do. I found it hard to prepare him as i dint know what the doctor wanted either, even though we had been pretening with a torch and looking in his eyes.
We got back to the room at 6.oopm, we are now both tired and buggered!!! Poor Brody had to be so brave today with all the new tests he has never had and new doctors coming in. Yes other children go through this but imagine beaning in Brody's shoes when you have Autism and see things differently then other children would. This would be so scary for him!!!
Rolling Stone Landscapes
Contact details- ph: 9651-5002 email: sales@rollingstonelandscapes.com.
Lane Cove River Tourist Park
Park it in Sydney! Its a Great place to stay. Lane Cove River Tourist Park, North Ryde/Macquarie Park, NSW, Australia, Enquiries lccp@environment.nsw.gov.au
Autism Behavioural Intervention NSW relies on grants and donations to operate their programs and services. Please can you help our kids by helping them. Address: Suite 202/35 Doody Street Alexandria NSW 2015 Phone: (02) 9669 2250
About Me
- Brody Thomas Reilly
- Brody Thomas Reilly is 4 years old, lives at Nabaic, NSW with his mum (Vicki) and friend (Bill). Brody has an older brother (Luke) that lives in Queensland. Since Brody was born he had a emergency caesarean on the 21/7/2005. At the age of six months he started having febrile seizures, which increased into seizure disorder and up to date has had 10 seizures, the longest going for 2 hours. At the age of 2 years he was diganosed with ADHD and then at the age of 3 years Autism. Then to top it all off at the age of 4 years he was diganosised with Acute Lymphoblastic Leukaemia with T-cell,and is now in Children's Hospital awaiting a bone marrow transplant. Brody loves and enjoys any type of super hero's such as Ben 10, spiderman, batman, Ninja Turtles, Power Puff Girls and more. He wants to drive a real Ben 10 car and he enjoys horse riding and has a special bond with Tyson and Tess the dogs. Brody has lots of fun and adventures with his cousins Domenic and Ethan. He also loves to dance, sing and pretend to play counrty music.
No comments:
Post a Comment