It started as a normal day with behaviour intervention and watching Tv, having fun with the boys before they went to school. Grandma and Grandpa went off to the school for grandparents day. While they were away I got a phone call from the hospital.
Brody's Bone Marrow test came back today and the cancer levels were to high to do transplant. Therefore we have to go back to hospital today to start chemo again to get the level down again. If they start now everything should be still be set for transplant. If we had left it, the cancer would have more of a chance to take over and transplant would not work. But this way we are giving more chances for the transplant to work and bet the cancer. (Hopefully).
I still get worried that the cancer might come back as Brody has had 3 blocks of strong doses of chemo and still the cancer is fighting it. So will the transplant work??????
We are all set up in hospital tonite, but only with limited stuff as i didn't get a chance to pack for a long stay or get things ready for isolation stage. Therefore will have to get poor grandma and grandpa to bring over stuff. They have started the chemo, but Brody is still normal as he has eaten chicken nuggets and chips.
We are in the same ward as always, which is good as he knows the nurses in this ward. Its funny to prove this, a nurse come in when lights are out and said hello to Brody, he forgot her name but went to grab her pen out of her pocket, as he used to do that to her every time she come in. LOL.
Its great to know they are understanding me now that Brody has issues and needs normal routine stuff, not one off fly byes, as it causes more stress for him. As they have planned now to be in one of the isolation rooms in the ward he knows with the nurses he knows. Its taking 6 months but they know what i am talking about now!! At least i have paved the way for other Autism children.
So our stay in hospital is now 11 weeks, please remember after this week, No body will be able to visit us as Brody will be in isolation and very ill from extra chemo and radiation. Thank you. I will post up dates and photos on his facebook and blog. Thank you to everyone for all your prayers thoughts and support. To my wonderful parents we love you and thank you so much for everything you do for us. xoxoxox
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