Didnt have to wait, back in hospital again!

Well we didn't have to wait to see the doctors on Monday as last nite, Brody's breathing got worse and his temp went up to 38.5. So Grandpa drove us down to emergency at 11.00pm. We went in and they took his bloods, started fluids, meds and did a chest x-ray. The doctors on duty were a bit puzzled with him, so she called the head doc for the nite, then she came in and she told me that she was worried, so she called another head doc, that has more experience with children that are having chemo. By the time that head doc came in Brody started to response to every thing.
Brody's breathing was nearly going three times faster than his normal age range. His heart rate was low, he needed oxygen and had high temps, which cause him to hallucinate. At 3.30am he started to get better and could then have a good sleep. Pity there is no bed for parents as i just had to stay awake all night.

About 10.30am they finally transfered us to our normal ward, where we have spent the day watching movies and catching up on our sleep. We found out that Brody has a growth in one of his cords. Therefore we are in hospital now for seven days. Brody is still up and down with temp, breathing and has still got that running nose. He has not eaten any thing today and is very weak. Hopefully the meds will kick in and start fighting this bug.

Clinic Day!

Brody, Grandpa and I went to the clinic today, Brody got his bloods taken and they were very low, so he had to have a platelet transfusion. We went into the doctors office and Brody was very good then usual, until the doctor come in closer to him and wanted to listen to his breathing. But then Brody started pushing her away, and grandpa try to help, but he pushed him away too. Brody then told me that she smelt. Shocked!!! I didn't know what to do, I cant really say sorry my son doesn't want you near him cause your breathe smells!!! I just tried to move his face away while she did it.
I should have know it, as he did it once before to a male doctor, but that time he said it to the doctor. I just said it might be your after shave.

Brody has always had certain sensory issues, as he does not like loud noises, smells and some textures. But now with him not well it seems to be worse. As his senses are effected by the chemo.

Brody levels are still low and we have to go back on Monday to see if he needs any more transfusions. He has still got the runny nose, and now is having trouble with his breathing, as he is breathing quickly and gets worn out very quickly. The doctor did nothing about it and just said he is breathing fast. So i don't know if the breathing is ok. Have to wait till Monday, when we see another doctor.

So, busy day and full of different emotions, as my thoughts were with a friend and family who lost a lovely little boy and had his funeral today. I have had so much hurt, sickness and death in my life the last year and half, i am starting to not believe in this world any more.

Shave for a Cure!

Yesterday at the hospital we had the wonderful Jill come and do some activities with Brody while waiting in the clinic. Brody got his bloods taken first and then we did some behaviour activities with him. Then we had to go into the small little room which Brody hates to see the doctor. Brody was worse then normal as he had been stressed all day about getting a sharpie. He tore the room to shreds, he throw the pillow at the doctor and throw the pencils all over the room. Jill has come up with some great ideas to help with this process.

After the doctor we waited again and after a few attempts from Brody to run off, they finally called us in. The chemo room was packed with other kids, and after the morning Brody had i didn't think it would be great for him to sit in there. So i remined the nurse that he had a running nose so we could get our own room. We did and Brody got his chemo and Blood transfusion in peace. He could sit up in the bed and watch his own movies. An hour before the blood finished two nurses come in and helped me hold him down for the sharpie. Again he hated the whole world, but he soon forgot about it, as i let him go up the see through lift. He loved the ride!

We have to go back on Friday to check his bloods and then back next Wednesday to do chemo all again. Brody's levels are low and still has his running nose. It is getting harder and harder to take him to the hospital as he cries the whole way and then wont get out of the car.

Today Brody's cousins Domenic and Ethan were colouring their hair for shave for a cure at school, which was a gold coin donation. I (Aunty Vicki) gelled their hair up and sprayed it blue and red. Brody also wanted to do this, so i gel the little bit of hair Brody has and sprayed his head. They all looked so cute! Domenic and Ethan told a friend they were doing it for Brody to help him. Love my Boys!!!

Pj Day!

Brody and i have spent the whole day in our PJ's, as we did not do much at all.
Brody woke up this mornig in a happy mood and got so excited to see his cousins Domenic and Ethan. He play playstation for a little while with them until Grandma had to do homework with them. We then said good bye and Brody and i decided to make a cake (well muffins) for Grandpa. So Brody told me he was the cook and i was the mix. But i think it really went the other way around. He then wanted to eat one straight away, before Grandpa even come back from the shop. Brody had to have his muffin and a cup of tea, (which is really Milo).

Brody then started to get tired and we went and had a sleep for a couple of hours. We both really needed that! He again woke up and come out into the back yard to help me get the clothes of the line and try and get him to have a game of ball. But Brody stayed outside for 2mins. He does not like the sun in his eyes and also has a issue with ants.

Brody used to love the outdoors as he would run around every where chasing the dog and chickens. He loved riding his bike and getting me to push him on the swing. You never saw him much inside. But now that has changed, he want even walk on the grass because of the ants. We put sunglasses on him and a hat and even still had a problem with the sun. It makes me sad that he cant enjoy what he once loved to do!!

Hospital clinic tommorrow, will be a big day, glad we got a rest today. Brody nose is running again, and he is still fighting this like a true hero. I love my son and am so proud of every thing he has gone through. xxxx

Out of Jail again!

After spending all morning running around the hospital collecting things and making appoinments and holding Brody down for a sharpie, eye drops and to change his dressing we finally got to go back home to Grandma's place. Now we are very tired and ready to go to bed early.

Brody is still doing well, which sometimes worries me as because of the Autism he dosent feel much pain or sickness, so you really never know if he is worse than he acts. We go back on Wednesday for another sharpie, chemo and most likely a blood tranfusion as his bloods were low today. It will be just for the day, unless he has any thing else wrong.

Brody has been really excited today now that he is home and loves to play with his grandpa. I would like to thank my parents for beening there for us, as they used to look after Brody when i went to Uni, my dad changed Brody's nappies as mum couldnt lift him. They let us live with them when we had no where to go and now they are looking after us and supporting us again. They havent had any time for themselves in the last 4 years, they are devoted to their family and put everyone before themselves. Love you mum and dad. xxxx

Last day of Chemo!

This is the last day of chemo and if we have no set backs we can go back to Grandma's tomorrow. I am looking forward to getting out as this week has been a hard week. I think i am just getting tired and a little run down and like Brody getting sick of it all. Brody has had a craving for Smith's chips. Chips for breaky, lunch and dinner. At least he had a apple in between the chips. He cant stand the smells from hot meals, which makes it hard for me to eat anything near him. Brody is also still very moody, but still wants huggles from mummy. Which has helped as mummy has felt very emotional today!

Its a lonely and emotional thing to go through, even though you have support from family and friends you still feel so alone. You sit and wonder why this had to happen and why did so much have to happen to my little man.

When i was little i wished like many girls for a house, husband and a couple of kids with a happy healthy life. Then those dreams have got shattered over the years and you just wonder why!

Like many others, i was shattered to find out Brody had Autism and needed extra help, I dint know how i was going to cope doing this alone, but my years as a early childhood teacher helped me research and understand what i had to do. So i knew i had to accept this and move forward for Brody. Then when i found out he had Cancer my world come to a halt, I was angry with everyone and again was devastated by the news. This was some thing bigger and beyond me. I didn't know where to start or how i would even be able to do this. But 5 months have passed and i have learnt so much, meet so many wonderful people and I know I have tried my best and been there for Brody through out all of his years. We still have so much more to go through and discover. But i know that this experience has given me the best thing of all. My Little man's love and friendship. I wouldn't ask for any thing else.

Normal day in hospital!

Today Brody went better with the eye drops, he still argues with me but at least i dont need to hold him down. He is still doing really well, but was very tired this afternoon, so went to sleep before 5.00pm. He looks a bit pale tonight and has been still very moody.

He had his Nanna, Pop and Uncle Dane visit him today, and he loved all the things Nanna brought for him.
Grandma and Grandpa also come to visit, and they let me know that pop's funeral went really well. My lovely mum also picked up mine and Brody's washing to take back and wash. Love you mum, Thanks! What would we do, without our mum's.

Otherwise another normal day in the jail house!