Australia Day!!!

Happy Australia Day everyone! Thank you to Featherdale Wildlife Park for Australian Boxing Kanagroo, Brody loves it.

Brody was very down today, his levels are low and i think he might need a blood or platelet transfusion some time this week. He has been very sensitive, crying at the drop of a hat. So we did not do much today and because it was so hot out there. We stayed at Ronald House and then drove over to Grandma's. While Brody and i had a sleep Bill left to go back to Nabaic. I hate good byes. I picked up Grandma's car and drove back to Ronald House. Brody did not eat very much at all today except some vegimite toast. He had a little play outside and he locked us out of our room, lucky the staff at Ronald's have spare keys.

Brody and i then sat around watching movies. I also gave him his injection, as i believe he is getting more used to this now.

Funny thing happen today, at the breakfast table this morning, i was looking through a magazine when Brody told me to stop. He pointed out a lady and man on their wedding day and said that was me and Bill in love. How cute is that? I love my little man's sayings.

Clinic Visit!

First part of our day we rushed to Centrelink to show ID so i could get a one off payment, Brody was sick in the car and had to rush back to the house to change him and wash his car seat. We had to be at the hospital before 10 to take bloods, which Brody did really well. They did a finger prick again, he was telling the nurse what to do. He loves the rountine and knows what happens.

Then after that we had to go and sit in the clinic, waiting, waiting and waiting. At this time centrelink rang me to say the one off payment was not approved as i have recieved a single parent penison before and on part carers pension now. It dosent pay to ask them for help.

While we were waiting Brody was really good, he only ran off once and sat down most of the time playing with his DS and watching the movies. We also saw the Bone Marrow lady, where we had to sign all the paper work. She told us his levels are too low at the moment to do the stem cell on Wednesday, so maybe thursday this week to wednesday next week. No result come through, but she told us that they would not use me or Joel for a match, but luke has passed 2 tests, we are waiting for one other test to know if he is a match. The waiting game again.

It was about 3.30pm when we finally got in to the treatment room to get his dressing change, thing that i put his injection in changed and then his sharpie. He did not like any of this and was crying and hitting me. Think by that time he was very tired. Sometimes i break down and cry too, as its so hard to hold him down still, when you know he dosent wont it and that it hurts. But i do try and be strong cause even though i have to be the bad guy, i know he loves me still.

We got out abut 4.30pm and went back home to rest.

We wish everyone a happy Australia Day and remember to say G'day to everyone.