Saturday was a normal quiet day. Brody had to get a sharpie as his levels to high from one of the chemo medications that help the GVHD and Brody's body accept the Transplant . The doctors come in and said he can go of night feeds only as he is eating like a horse. They also told us that on Sunday we could go on a gate pass to Grandma's house. Yeah!!!
Sunday come and we were both so excited to go to Grandma's but the doctors said he needs a chest x-ray as he still has a cough. Therefore we had to wait, also he had to have another sharpie as his levels were to low this time. We finally got out at 11:30am and got to Grandma's and had a lovely bake dinner. Then the hospital rang me and we forgot to get his medications so i had to drive back and pick them up. So now i feel tired and cant wait to go back again and have a sleep.
Brody is having trouble walking, and needs the wheel chair, he also gets very tired and seems very lost as he is not in routine again. But he really enjoyed staying home and having Grandma's cooking.
The doctors have said he might have to have a CT scan on Monday or Tuesday, so we will have to wait and see if we do get out next week. Even though its hard staying there and you don't have a life or you feel like you are in jail, I will really miss the nurses as they all have become like family and you really get used to having them around.
But this is not over as if Brody gets a temp or anything we will be back. Its going to be another long hard year and i am just hoping Brody can keep going.
Sunday, August 22, 2010
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