Sunday, March 21, 2010

A Never Ending story!

It really feels like a never ending story as each day is the same, routine checks, play activities, watch movies and sit in this tiny little room each day.

Brody still is having temps, but not as many and not as high as they were. His levels are still to low as his immune system is at 0. So they wont let us at of isolation until they improve also. He is still needing oxygen while he sleeps, as if he doesn't get enough and can cause more problems. The doctor's told me today that his bloods came back high, so they didn't do the blood transfusion. But they think this result is wrong, so they will check again tomorrow. He might need yet another platelet transfusion tomorrow as well.

Brody has a thing about this one lady doctor as he mucks up with her all the time. He kicks her, hits her and wont do any thing she wants. We have to hold him down each time. I think its because she is very quiet, and too gentle in her ways, he knows he can get it over her.

Here is a video of Brody at the clinic, he has to have a nose test, but he doesn't know that yet. But he still is stressed about it as every time we go he thinks he is going to have the nose test or a sharpie.
Yes this can be normal behaviour of any child, but this was a good day, he does get worse and sometimes more violent. Other children come around after a while, or you can offer them something in return, but you can't do this with Autism children. Nurses have told me that it is easier with other children.
So please dont judge children or parents if you only see things once. As parents dont want their child to have this and they dont make it up. Autism is hard to live with and they are not normal children, so dont say Oh but he looks alright or all children do this! Because they are not normal children!
It is heart breaking to watch, but this is what i have to go through all the time and try and hide my tears and pain. Then i have to hold him down and become the bad person, as after all this he hits me and tells me off. Its the most horrible and difficult thing i have ever been through in my life, but it has made me stronger person.