What a busy day we had, first was a horrible time with a nose test and throat test. Which Brody again had to be held down and he cried his little heart out. Very sad!!!
After we got over that, the fun and happy, lovely lady Jill and our new friend Chris come and played some behaviour activities with Brody. They have so many great ideas and give Brody so much more than they know they do! Thank you!
We then had a special visitor from the hospital come and play some great music with us. Brody has always love the guitar as his brother Luke plays one. So he had lots of fun playing and making lots of noise. It was good to see him beaning happy and not so frustrated with the world.
Brody has had yet another temp of 38.2, but it went back down within an hour and a half, without panadol, so hopefully they want make us stay the 48hrs from that one. He also had to do a poo test today, was worried about that as he has only done one poo in the 11 days, they are giving him something for it but Brody just wont go. Yeah!!! He did finally go tonight! I think he is starting to feel and get so much better, his levels are still low at 0. so they still might keep us in until they get better.
Its so hard to tell you all what this is like, as if you haven't been through this your self, you wouldn't understand. Try picturing beaning trapped in a room, with no way out, no one to talk to and not knowning when this will get better. AS you can tell, i am having one of those days were you just feel down, lonely and depressed. You hear everyone talking about their lives and what they have been up to and how happy they are, i am so happy for them but then so sad for us as after 6 months today we are still struggling to keep our heads above water.
I think one of these days i am just going to have a meltdown as i have had so much hurt in my life the last 4 years that my heart is starting to pain. I haven't really had the time to fix my pain, so now its all just catching up with me. Oh well!!
Hope you like Brody the rock star video!
Wednesday, March 24, 2010
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