Monday, September 27, 2010

As you all know and i have said before weekends are really quite and boring, so i have a rest from writing the blog on those days. Unless something happens, then i will write something.

Over the weekend Brody has had the steroids which has perked him up a bit, and becoming his cheeky self. Autism children don't know social behaviours like normal children and when and not to do things. Brody gave a perfect example of this as he went for a squeeze of a nurse's boob. It was really funny and kind of cute, but the nurse and i knew we couldn't laugh and had to have our cranky faces on so he would learn he can not do that to people. I can understand if its a little child, as i used to get that at day care, but not when they are five.

Brody is still on the TPN, and nose feeds as he still isn't eating. Because of the steroids he wants the food but when he gets it he cant eat it. Today he had 12 little chicken in a biscuits, a least it a start.

He is still having low levels of potassium, which is normal. The doctors booked his PET scan for tomorrow, but due to the virgin blue flight cancellations, he cant have it till Thursday, as something has to come from Melbourne for the PET scan and wont be here till Thursday now.

Brody is still doing runny poo's and going through heaps of nappies and wipes. He also has a sore red bottom that needs lots of cream.

We also moved rooms today, back into the nice big room, we had for transplant. The lovely nurses in Variety loves as both, they organised the room for us. Which will make life a bit more easier, as i think we will be here for a while. Brody needs to be on full feeds, no TPN, no temps and alright to go before we get home. So will be a while.

The steroids have been stopped today, so the next couple of days we will see the GVHD coming back. Hopefully it will work its magic. We wont know till a months time, when they do the next bone marrow test how good it went.