Quite Day!

Last night was very stressful as Brody had to have oxgyen on all night. His breathing was fast and he wasnt getting enough oxgyen. He would not wear the mask, so nurse Jessica put the mask upside down on teddy. Brody then hugged teddy, while the mask was near his face. He also had the machine hooked up to his finger. If it come off, it would beep, if he was low on oxgyen it would go off. So for me it was a nitemare. I had to get up every 15mins to half hour to fix it all up, so he would be comfortable while he sleeps. His temperature was still up and down all nite.

Today he has been very stubben and less active, he has lost another kilo and was sick after the little bit of lunch he had. His temperture is still hitting the 38.9 and dose not come down much even after panadol. We still have no news about what is wrong, but doc said we cant go anywhere until his temps have stopped for 48 hours. So i would say we are in here till mid week or later.

Grandma stayed with me again today, and i sneak a little light sleep in but still very tired and worn out, even having problems walking. Hopefully get a good night sleep tonight and then i will be good as new.

So its been a quite and dull day today in our little room. Brody has started to show signs that he is sick of this too, by hitting, yelling, trying to jump out of bed and not doing what the nurses want. How are we going to cope with the 6 weeks of the transplant? Oh No! and Now he is watching Chitty Chitty Bang Bang. HELP!

Ups and Downs!

What a day, Brody still had a high temp this morning, but had a little bit more colour in him then yesterday. As last night they gave him his approx 9 blood tranfusion. He was still less active and glassy eyed.
We had lots of hospital staff come in and talk to us today, as an OT come in and said she would help with ways we can help Brody in the clinic and what goes on around the hospital and what he needs to do in these areas. We also had the social worker come in and check up on us. A lady from the group called Cure our Kids come to talk and give us some useful tips. The play therpiast gave us some water play toys, painting and playdough to borrow and play with. Brody squrted water up to the roof and fell back down onto my head. He laughed and so did the doc.

Today Brody is having meds for an infection (unknown at this time) and fluids as he is not drinking much. He also still had his chemo (Asparaginse and Vincristine). It took 2 nurses and me to hold him down to give him his injection. I also got hit and told he hated me. I was in tears, you think you would get used to it, but some days it can just take over your emotions.
Brody also had to have a tube which was like a vac shuffed up his nose, which again took 1 nurse, my mum and me to hold him down. This time it was mum and me in tears. This was to check if his running nose is some sort of virus.
They sent a sample of Brody's wee, wee off as the nurse tested it and it had signs of blood and signs of an infection. The nurses also collected bloods again to check for anything.
All results from these test we will not get back till tommorrow. Sorry, you to have to play their waiting game.
Brody's temp has been between 37.7 to 38.9 all day. His breathing has been faster then normal and they wont to put some oxgyen on him in his sleep tonight.

He slept the afternoon away, until our lovely friend Chantelle come for a visit, Brody perk up that little bit as he has problems with me talking to other people, but Chantelle knows what Brody is about. She brought us some lovely gifts that some of her wonderful friends gave to us. Thank you to those wonderful people and Chantelle for everything. Brody loves his new hat and i love it too, cant wait to one day go shopping again and show people when they think he is playing up. As he is no little naughty kid, he is Autistic!

Brody would have started school today at Forster Primary School Support Unit, so it has been a bit upsetting to know he is not going with his friends and be able to do normal things like all the kids, as he talks all the time about going to school and eating his lunch from his lunch box (like this, see. Brody would say.) Its hard to not be able to make your child happy and enjoy life like others.