Very busy couple of days, with Blood and platelet transfusions, meetings, tests and people coming in and out. Some days it feels like a circus, with so many different hospital people coming. There is no privacy or much time to just be by yourself. So when we get go home we just cant wait to be left alone by everyone. The funny thing is, even though you have all these people coming in, you still feel alone, and i think its because Brody and i are going through this battle alone, its not their battle.
Brody had a bone scan yesterday and today he had to have a finger prick blood test, which he wanted me to go first to see how brave i was. LOL. It didn't help, i had to hold him down. He has had this before and went really well, but i think he feels alot more now that his body has gone through so much, its become sensitive.
I had a meeting about LUke with Transplant team, but didn't find out anything except Brody's transplant will now be early July. 3 weeks before transplant we will be in isolation which means no visitors for this time and the time during transplant and 4 weeks after transplant. So it will be a very hard time for both of us.
Brody has his lung test tomorrow and if he is well enough after it, they are letting us home and Brody will go on tablets for his infection, instead of the drip. Its great news as we have been here for two weeks now, and need to have time at home before transplant starts. We will still be in for more test and check ups, but a least we can be home and do this we want. Brody aslo has a hearing test tomorrow, so another busy day, really warn out this week, its been the busiest week of them all.
Sorry the video is on the side. xoxoxox
Thursday, May 20, 2010
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