Day 34- Post transplant

Brody had a great day today, for the first time he painted the number 10 and the letters B and M. He told me the M was my name! I said Wow, yes your right, as M stands for mummy. I was so proud and excited as he was having troubles even saying the number 10 for so long and now he could paint it and say it. He has know the letter B but he has found it hard to do another letter, so when he did M. It just made my day!

He had a transfusion today and all the 50 different types of medications he normally has. They also stop the feeds tonight, but he still has to have extra fluids in the nose tube as he isn't drinking enough. He will still need the feed tube in as they are worried that after the steroids are finished he will not eat much.

Tomorrow is the big day with the CT scan and bone Marrow test. I hate when they put him under as you are always worried that they might not pull through it. They don't normally do this test so soon, but they need to know what is going on with his chest. Hopefully the bone Marrow will be fine, as i don't think it would come back this early, but you never know, i guess!

Thursday Brody is having the 9hr treatment for the poo bug again, such to make sure it wont come back. Then hopefully on FRiday they will let us go home, if all is well with the results.
Can't wait for the break and the rest.

I found out today from Woodbury the special Autism school that they wont take any new student for next year. So now i am still looking into other schools in the area and trying to find one that will give Brody the best chance and understand all his needs. A huge thank you to the wonderful people from ABI for all there help in supporting us through this school experience.

This has been a long hard road for me and Brody, i just cant believe how well he has done. He is so tough to get through all of what he has been through. He is truly amazing!!! He still has a long way to go and it will never be over, as there are so many things later in his life that could happen. As i mention before in the later effects, such as another cancer, no kids, lung, heart and other problems. But now we are so more prepared for anything and will will tackle it when the time comes.