Clinic Visit

Went to the clinic today, and found out the results from the last bone marrow test.

The good news is that it is getting lower!!!
Augusts level after transplant was at 5, Septembers level was at 2, Octobers level was at 1.5. so at the moment they are hoping it will go lower but we wont know till the next bone marrow. The doctors want the level to be negative numbers, not positive numbers, so we still have a way to go until they will be really happy with the outcome. But at least it is heading in the right direction, it gives me hope.

Also Brody will have to have a bone scan next week, for his leg and hip. AS some days he cant even move it and drags his leg along while walking. The doctors have told me that it can happen with kids like Brody as they have been through a lot of treatment, over the year and what happens is the treatment makes their hip and knee joint thin and weak. So at this stage we have to look into to see the damage, but Brody could have to have a hip replacement in his teens or 20's.

So as you can see, its not the end of hospital life for us, once your hit with this horrible disease, it never stops, as there is so many complications with the treatment. But one lucky things is that i still have my boy, as another friend of our lost her little daughter this week, so my thoughts and prayers go out to LIlly and her family. R.I.P. Lilly. xoxoxo

Please think your selves lucky and dont take anything for granted, as you all get to live a normal life and do things when you want too, where our life has no plan and cant do things. Also respect people that are going through this as its no picnic and really think about them. AS its funny hearing other peoples story's, of them saying they cant afford things either but then next minute they are off on a holiday, or telling you what they want and when but they can live a normal life and do that, but people going through this have no life and cant do things when they want.
Its just so hard, as you see life so different now, and we are really happy for people that they are happy and proud and can do things, but deep inside we really wish that we could be there just for a little bit, as this is one long journey that will never end.