The morning started with a temp of 38.7 and Brody did not feel like eating anything. I then had to give him all his medications and add some fluid into him as well. He then was sick all over the bed, so i call the nurse and we changed his bed, gave him a quick wash and changed his clothes.
Doctor's all come in and check him and told me that late next week will be his bone Marrow test. If the temps are gone for 48 hours we can go home and then come back for the test next week, so we are hoping they will go for the weekend, so we can go home for a while. His temp is still sitting at 38.0 now. So 48 hours from tonight.
Now that he is off the steroids he is not eating as much, and has started to have his day sleeps again. He is still his happy self and never complains about anything. He is truly amazing! His GVHD rash has come back a little bit, mostly on his tummy, under his arms and around his hips, but its not too bad and not like he had in transplant. So lets hope its doing its job and killing all the cancer cells.
After his long sleep, he woke feeling better, and ate some food, while watching Tv and playing DS. But he went to sleep around 6.30pm, which is really early for Brody after having 4 hour sleep during the day.
Tomorrow he has the 9hour treatment again for the poo bug, as he needs to be clear of it for a month before they will stop it. It seems like forever!
I am really worried about the outcome of the test next week, as i have know from the start that he had a very aggressive cancer, but i hide my emotions and feelings as i want Brody to enjoy his time, not worrying about mummy and why is she upset. What i find is amazing after we have spent a year together 24/7 and knowing other parents that have lost their child, is that everyone thinks that's a sad thing but you have to move on. Yes i agree but wait for a moment and think about that parent, who hasn't done anything for a whole year except looking after their sick child. Its along time. It will take a longer time to heal and get over not having that child with them. How can they go back to work after a couple of months or get over something like this so soon????? Its not that simple. My feelings go out to all my friends that have lost their child. Thinking of you all xoxoxox
