Monday, April 19, 2010

Heart test and Clinic Visit!

Domenic and Ethan were here first thing this morning, as school starts back. Brody then didn't want to go to hospital. He was yelling, crying, "I hate this hospital". He was so stubbon, i had to pick him up and force him into the car, as nothing would work to try and get him in.

After awhile he was ok, then like normal runs off into the hospital, we me trying to keep up carrying the heavy load of stuff we need to take just for half a day. Couple of times i have lost him, but found him after i have looked around the place to find out where he went.

Brody got his bloods taken today, all were at a ok level, but still very low. They normally do a transfusion if your blood is lower than 80, Brody's blood was 77. I dont know why they didnt do a transfusion, but it could be because he has new bloods, which will make it rise as days go on.

He also had a Heart test today, which turned out all normal. So Chemo starting on this Thursday. We will be in for 6 days. Hopefully i will also find out more about the transplant too.

Brody was so much better today waiting and seeing the doctor, even though she did not check him out. After all this happen, we had to wait that little bit more as i had asked to see another doctor about the transplant. We waited and waited, Brody turned back to his old self, hitting me, biting me, kicking me and even spitting on me. I was not going to take it any more, so i told them not to worry and took him home to go to bed. I think he just had to much waiting, as usally he only does things like that when someone is trying to do something to him. He has only ever done this to me at doctors, but never while waiting or at home.

Love how people judge you for your child, but they have no idea what it is like living with a child with Autism. If they are not in their normal routine or get out of their routine for a little while, the parents have to work twice as hard for a week to get them back into rountine. So for me and Brody this experinece is alot of hard work and we both get so frustrated.
So unless you know what we are going through dont judge!!!!