Monday, May 31, 2010

Check up day!!!

Today Chris from the great organisation Autism Behaviour Intervention come to do Brody's routine work, but Brody has been very hypo and more distracted again, like he used to be as i think because his counts are recovering and he feels so much better after a month of no chemo, he is starting to act like he used too. Its a worry!!! But it could also mean he is not feeling well, as the cancer could have increased already. Just have to hope that its just a phase and he will improve as days go on.

We also had Brody's clinic visit, which for the first time it was faster then any other time. Brody acted up with the doctor as well again, like he use too. Bummer!! I love getting kicked in my tummy and holding him back from the lights switches, so he wont turn them off and on while the doctor is trying to write.
We didnt learn much again today, only that the transplant team will ring me with a appointment to talk about everything. He still has to have a hearing test, and another CT scan before everything happens.
I also found out that his EEG was found a little add normal, so they will keep him on the sezisure control tablets and might change to a different tablet after the transplant.

Our next visit is next tuesday unless transplant team ring before than. So we are looking forward to living a so called normal life again this week, as this is the first time since we moved down to Sydney we have a good break away from Hospital life. I cant believe nearly every second week and week we have been in hospital. We are looking forward to the peace, privacy and just to sleep in, go to bed early, do nothing and spend time as a mother and son not a mum playing doctors and nurses. I am looking forward to running around the house, dancing with Brody, playing ball, playing Wii with Brody and all the things you might take for granted when you do them with your kids. As there is so much you can do in a hospital room and we have missed so much. We really do deserve this break as its going to be a long, hard time to spend 8 weeks in isolation. Thanks again to everyone who come to visit us in hospital and showing your support but please remeber that we can not have any visits during the isolation period, this is for Brody's safety and his health. Thank you xoxoxox