Tuesday, June 15, 2010

Today we had Chris again from Autism behaviour intervention to do some behaviour work with Brody. Before ABI started i could not get Brody to do any type of school work or even get him to sit at a table. But now he is doing so well, sitting at the table and completing some school work. They also help with Hospital procurers too, like putting a nose tube on his face or in his nose, Brody now lets us put the cord in his nose and taped on his face. Which will help him so much when it comes to having to have one on his face.

ABI will not be coming after a couple of weeks, but we have now received emergency service again for after transplant to help Brody transition back into normal life, which is going to be a great help, as he will need to be toilet trained, socialized back in with children and follow new routines of home. Thank you so much to ABI for all there help.xoxox

Brody face isn't so red today so what ever it was, it seems to be going. He has ran around the house playing chasing and hide-n-seek with us. He is a very wild boy and keeping me on my toes. He also packed his back pack and told me he was going to Nabaic. He then went out the front door and up the drive. I feel so sorry for him as he really wants to have his life back at Nabaic. He misses his chickens, dog, horse and his spaceship bedroom. I too, wish that we have a life as it gets very hard. Unless you have experiences this you would never know how hard it is.

Luke is doing ok, he is laughing about his accident yesterday and now riding his bike again. So i don't think it was to bad, but it still would of hurt. Ouch!!!!

Worried!!!

Brody had his behaviour activities to do today with Chris from ABI. He went really well this morning, until right at the end where he had to go into timeout for hitting. When Chris was leaving he told him he will see him tomorrow and that he loved him. How cute!!!

We also had Dianne, the nurse from the hospital come in and flush Brody's cords to give them a weekly clean. She was in and out with no worries. It was so much better than going in for hours and waiting around.

One of the doctor's rang us to tell me to increase his anti -biotic as his anti-biotic level was too low. But still no news into whats happening to get ready for transplant. On Friday we will be going in for a hearing test and to get some more meds, so hopefully i will find out something or i will chase it up, as i will go see the main doctor and let her know i haven't heard anything yet.

Brody is doing really well that he has become hypo like he used to be and eating lots of food. He has had a red face and ears the last couple of days, but his temperature has been fine and there is no other signs of things happening, so i don't know why he has a red face. Grandma said that sometimes meds can make you have a red face, so i am hoping that is what it is.

Oh! I am now worried about Luke as he burnt himself and went to hospital today. He is ok and a friend is staying with him. He has to go back tomorrow to checked out but he should be ok. How i wish he would come back home. Brody and i miss him badly.