Very tired!!!

5.30am the alarm is ringing in my ear and i didn't want to get up but i knew i had to get Brody awake so then he would be able to go to sleep at 11.00am for EEG. I got out and got Brody up watching Tv and got his breakfast for him. I then did Brody's activities with him to tire him out mentally as well.

The nurses come around to give him something little to help him sleep, which he hated and hurt his mouth sores. But every thing was well worth it as I got Brody to sleep very quickly (First time ever). He had his EEG and then come back to the room and slept for over 2 hours. I also tried to have a sleep, but during the day it is alot harder as there is more noises. Should fine out something from the EEG tomorrow, which will be interesting if his seizure disorder has turn to epilepsy as they have told me in the past that it would.

Brody's temps are not coming so much but still peaks high once a day. His nose runs like a tap and still has his cough. They are going to to yet another CT scan of his chest, head and tummy tomorrow. He will be but under completely for that one.

I have been very emotional lately as i am finding every thing getting just to hard. Its alot of work to look after a child with Autism in hospital 24/7 and then have wonder and stress how i am going to answer the next debt collector on the phone. I have so much going on in my head that i cant let out and i have to just keep pulling a fake smile, it is sending me crazy. Also worrying about what will happen and just not knowing what is going on, as they never tell you much and then they change their minds all the time. It is so frustrating.............. Grrrrrr.........