Very quiet day, Brody is still doing a great job as he eats and is hungry all the time. Love those steroids!! He is not sleeping as much as he wakes up during the night and sings songs.
This afternoon nurse Belinda took of his TPN which is the vitamins and fat that was going though his cords. We were all so excited, as the machines are slowly going and its a count down to leave the hospital.
I wasn't prepare for Brody to do so good, as the doctors told me so much stuff, and we now that things are different with every child and they have to tell you the bad stuff, but they did that talk from the start, the talk from when he had to have the extra chemo ontop was worse, but he has just proved that nothing can really knock him down, as he has only had little problems that they could sort out, nothing to major. Knock on wood!!!!! AS we still have a long way to go, as we have to be strict when we go back to Grandma's and we still have the worry that the cancer can come back and the late side effects from all the radiation and chemo.
Its been very hard this past 11 months as your life is just turned upside down and not knowing where your life is heading, i have had times when i feel so alone, even when i have great friends and family that have kept us going through phone calls and facebook. You are all amazing. Thank you.
My dearest Luke has made a bond with his brother that know one will every be able to destroy and even when he is going through his own pain. His life has just proved that DNA doesn't make a family, its commitment, love and trust that make you family. Poor Luke had to learn the hard way but he is still lucky as he has a family with us. We love you LUke. xoxoxo
