Busy Day!!

This morning we had Autism behaviour intervention come and help Brody get used to things he will need to have before transplant. We are also meeting with the play therapists from the hospital to help us too, as ABI cant be there when he is in isolation. Which is looking to be up to 8 weeks or more, depending how Brody goes.

The music therapist also come in and did some great jamming with Brody, as his favourite song is We will, We will Rock You!! He had lots of fun!

Brody also had surprise mouth swob's and visits every two hours from the nurses, to check his routine temps and blood pressure.

Grandma and Grandpa brought Luke in for his tests, which is personal business between doctor and Luke. As he is now a adult and can make his own decisions. So all i can tell you is he was gone for over 2 hours and had a blood test. He will have to come down again at the end of the month for more tests and then for transplant mid June, Hopefully!!!

Then we had a surprise visit from the brain doctor as they have booked Brody in for a EEG tomorrow, because of his seizure disorder and they want to check him out before transplant. So I have to not let him sleep so much tonight, so he is tired for the test, as he needs to be asleep. Grrrrrr....

Nurse then come in at 3.45pm and told us we had a appointment at the eye clinic for Brody at 4.10pm, WT! we then sat at the clinic for 2 hours waiting. The doctor had a hard time as Brody was tired and sore by this time as he had no day sleep. Brody also found it hard as he couldn't understand what the doctor really wanted him to do. I found it hard to prepare him as i dint know what the doctor wanted either, even though we had been pretening with a torch and looking in his eyes.

We got back to the room at 6.oopm, we are now both tired and buggered!!! Poor Brody had to be so brave today with all the new tests he has never had and new doctors coming in. Yes other children go through this but imagine beaning in Brody's shoes when you have Autism and see things differently then other children would. This would be so scary for him!!!