Not much news today as Brody is still the same. He did have his 9 hour treatment for the poo bug again. Cant wait for that to finish.
Doctors said sorry for gate pass issue yesterday and told me they forgot he was still on the potassium and TPN. They will now include the potassium with the TPN and run the TPN for 20 hours so that way he will get 4 hours without the cords, so he can get some exercise.
PET scan tomorrow, so big day.
Brody and i worked on his cutting, painting, drawing, and played playdough today. Before this i couldn't even get him to cut a piece of paper and now he wants to cut. Think he knows he can do these things as he cant do active things. One good thing is that it has taught him to do different school stuff and with all my work and ABI i think he will be ready to start school in a support unit next year.
Tuesday, September 28, 2010
Brody's GVHD is coming back like a steam train. He is very itchy and is having cold shivers. This is a good thing but we don't wont it to get to bad.
Doctors said today that they will do the PET scan Thursday and see what is going on, then they might put him on a new tablet that helps with the GVHD. But all this work does not change his very high risk of the cancer coming back.
The silly doctor's also told the nurse we could go on a gate pass today. I had to laugh as the nurse told me, as i said to her, what about his TPN and Potassium? As you cant just stop these, you have to slowly come off them. The nurse said yes that's right, she went and doubled checked with the doctors and come back saying No gate pass! LOL I should be a doctor now. But worse part is, it doesn't give you much trust in your doctors when they forget that they were the ones that put him on the TPN and Potassium. But everyone forgets and makes mistakes, as i think they were thinking because they have stopped the anti biotic he could go out today.
Not much else happening, is all a big waiting game and cant plan anything. You all should look at your lives and be grateful for all the little and big things, as i am very grateful for everything as this experience has taught me so much about life.
Doctors said today that they will do the PET scan Thursday and see what is going on, then they might put him on a new tablet that helps with the GVHD. But all this work does not change his very high risk of the cancer coming back.
The silly doctor's also told the nurse we could go on a gate pass today. I had to laugh as the nurse told me, as i said to her, what about his TPN and Potassium? As you cant just stop these, you have to slowly come off them. The nurse said yes that's right, she went and doubled checked with the doctors and come back saying No gate pass! LOL I should be a doctor now. But worse part is, it doesn't give you much trust in your doctors when they forget that they were the ones that put him on the TPN and Potassium. But everyone forgets and makes mistakes, as i think they were thinking because they have stopped the anti biotic he could go out today.
Not much else happening, is all a big waiting game and cant plan anything. You all should look at your lives and be grateful for all the little and big things, as i am very grateful for everything as this experience has taught me so much about life.
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