Brody's temp is still up as it reached 39.3. His rash still looks like its spreading as he has tiny marks on his tummy and back. He had to have yet another lot of platelets today and his mouth has sores inside it.
He hates the daily sharpie in the arm, but he knows the routine and if a different lady comes to do it, he tells her she forgot something.
I made a video of our room and what it is like, as i wipe down everything in the room every day, anything that comes in needs to be clean and brand new. We have to wash our hands before entering the room and again before touching Brody. I cant wear rings, watches and if my shoes get dirty i have to wash them. The craft lady comes by and gives me brand new paper and paints to use with him. So we have been in hospital now for 5 weeks and still have a long way to go. Even when they tell us we can go back to Grandma's we will be still in isolation for 6 months.
Hopefully in the next couple of weeks we will know some news if the Transplant worked. But we still have to worry about it coming back within the next 6 months.
Sorry its on the side. xoxox
Saturday, July 31, 2010
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