Thursday, July 8, 2010

Rest Day!

Radiation was cancelled today as they had to do a machine cleaning or something. Therefore Brody and i had a slow rest day.

Tomorrow we have today's last head radiation and the doctor's have told me they will be putting the nose tube in as well to see how he goes. Bit worried about that as he still hates it and we only got up to a hour and a half to wear it on his face and 30 secs with the tip of the cord into his nose.

Brody has finally gone to the toilet, but i am a bit concerned as his tummy and cheeks are a bit swollen, i will talk to doctors tomorrow about it. He is still eating lots and still has lots of energy but gets tired quickly. His counts are coming down slowly and next week will be the biggest and busiest part of the whole thing.

Transplant doctor came in last night and talked to me again about what is happening, She told me that they can cure most children but some they cant. I really feel that they aren't confident and wonder if i am doing the right thing for Brody. This is very hard for me as there is so much pressure and stress, its hard for all you to imagine and i hope none of you have to go through this. The whole 9 months have been so scary and i think its all starting to catch up with me. But i just take each day as it comes and will keep going no matter what. I am just hoping nothing else will stress me out, so i can just concentrate on getting Brody better, as all this is about him and getting him better.