Today has been mixed emotions, Brody couldnt have the stem cell again, but went and had the CT scan. They also put a tube down into his lungs and put fluid in and then pulled the fluid back out. They want to see if he has something in his lungs causing this. He was under for over hour. Again i had to bite my tounge as a nurse from the CT department told Brody to be quiet and still for a moment while she was talking to another nurse. A big thank you to the other nurse, as she looks after Brody and told this nurse, he has Austium and cant sit still or be quiet as he is in a new area of the hospital. So you can see that Chantelle's story books have helped people understand Brody and not just think he is Naughty. There are more and more kids with Austium so please read up on it and do not judge anyone.
Some new Doc's come to visit today and said they are waiting for results from the fluid test in his lungs. They then might put a camera down and have a look, as the Doc said he had a quick look at CT scan and saw a mark on his lung. But wait a couple of days for results, as it could just be a fungal infection. Hope its nothing to bad. Couldnt handle any more bad news!
Good News!, Found out today as well, if Brody makes it through the time before his transplant his big brother Luke might be the person who donates. As they need to test Luke first to make sure he is physically fit, and healthy. If so they will use him. It might take us up to 8 months before transplant. I am so happy, but have tears too, that his big brother can, and will do this for his brother. I love him so much.
Brody is still not that good today, as he has still had high temps, sore legs, tired, hard to breathe and sick of it all. Therefore its been one of those roller coaster emotional days. I have the best two boys a mother could have and i LOVE them sooooooo much.
Monday, February 1, 2010
Hell of a Day!
Brody's day has been the worse day for an Autistic child, as he has had strangers coming in and out, and so many people touching him for tests.
To start with he had a nurse put the tube up his nose again, while i had to hold him down by sitting ontop of him. Then within 15 mins after it the blood lady come in to take finger prick to get some blood, but because he wasnt bleeding that had to do it 3 times. He has had this before with no problems but once he got frustrated with the nose, that was it, he did not want this either. By this time i got yell at, hit, told he hated me and scream right in my face. But thats ok, as i dont blame him, i would do the same thing. He then did tell me he loved me and gave me a cuddle. Thought that was all finished and finally got him settled, when two nurse come in and we all held him down and gave him a injection in the bum. Boy that was tuff! He did not like that at all.
Brody was starting to go to sleep and then broke out in welts again, Doc was called, Lack of communication happened and they gave Brody the one of his meds the wrong way, which then like before made a reaction. They fixed the problem so it wouldnt happen again. Lucky i was on the ball and worked it out and told the Doc. As he thought it was from the chemo injection, but he has never had a reaction to it. Should have been a nurse!
Brody temp has dropped with panadol, but goes up again later, still having oxgyen when sleeping and is going to have CT scan tommorrow. Levels were to low for stem cell collection.
After all that happen he had people that did not read his story or they dont understand him, and just come in expecting him to be like every normal kid and hold the part of the machine that goes on his finger (see picture) with no worries, SORRY not normal child, he wouldnt hold it even though he has, He just had enough, and she got a bit shirty with me, as i told her he had enough and not to worry about it, as it was not important at this time. She then ripped the thing out of his hand. I was getting ready to go off. I bit my tounge.
This is the type of things mothers and families have to go through all the time 24/7 with people who dont know anything about Austium or just cant be bothered to even read about it and know Whats the best thing for the child! Austium should not be ignored it too, is just important as having cancer. As you have to learn to live with this for your whole life and effects every day living. Family and friends need to learn more about it before they make a comment.
To start with he had a nurse put the tube up his nose again, while i had to hold him down by sitting ontop of him. Then within 15 mins after it the blood lady come in to take finger prick to get some blood, but because he wasnt bleeding that had to do it 3 times. He has had this before with no problems but once he got frustrated with the nose, that was it, he did not want this either. By this time i got yell at, hit, told he hated me and scream right in my face. But thats ok, as i dont blame him, i would do the same thing. He then did tell me he loved me and gave me a cuddle. Thought that was all finished and finally got him settled, when two nurse come in and we all held him down and gave him a injection in the bum. Boy that was tuff! He did not like that at all.
Brody was starting to go to sleep and then broke out in welts again, Doc was called, Lack of communication happened and they gave Brody the one of his meds the wrong way, which then like before made a reaction. They fixed the problem so it wouldnt happen again. Lucky i was on the ball and worked it out and told the Doc. As he thought it was from the chemo injection, but he has never had a reaction to it. Should have been a nurse!
Brody temp has dropped with panadol, but goes up again later, still having oxgyen when sleeping and is going to have CT scan tommorrow. Levels were to low for stem cell collection.
After all that happen he had people that did not read his story or they dont understand him, and just come in expecting him to be like every normal kid and hold the part of the machine that goes on his finger (see picture) with no worries, SORRY not normal child, he wouldnt hold it even though he has, He just had enough, and she got a bit shirty with me, as i told her he had enough and not to worry about it, as it was not important at this time. She then ripped the thing out of his hand. I was getting ready to go off. I bit my tounge.
This is the type of things mothers and families have to go through all the time 24/7 with people who dont know anything about Austium or just cant be bothered to even read about it and know Whats the best thing for the child! Austium should not be ignored it too, is just important as having cancer. As you have to learn to live with this for your whole life and effects every day living. Family and friends need to learn more about it before they make a comment.
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