Day 11- Post Transplant

For those who have just joined our journey, Brody has gone through 4 months at John Hunter Hospital Newcastle where he was diagnosed with Acute Lymblastic Leukaemia with T-cell. They started him on standard chemotherapy and we had to wait 79 treatment days for the results of how aggressive his Leukaemia is. I had found out that the T-cell part is rare and it normally happens with boys. The leukaemia goes on different levels, which are standard, medium risk, high risk and very high risk. This determines how strong the treatments will be and what is needed to be done. So the day after boxing Day 09, we got told it was very high risk and he needs a transplant. But we have to move to Sydney as Newcastle don't do transplants.

So we set of to Sydney where we stay at Grandma's and at Children's Westmead Hospital. Before transplant Brody had to go through 6 months of high risk chemotherapy and then have a months break to give him time to heal before the conditioning treatment of Transplant.
But in that months break they found the Leukaemia come back again, and would have to have another dose higher then before to get it down enough to do the Transplant. As the level was too high to do Transplant. Therefore we were called in early and he was given the higher dose.

They also asked me if i wanted to go through with the Transplant as because his Leukaemia is very aggressive, its more likely not to work and if it comes back within 6 months they cant do any more. There was no other option's, except give him that 1% chance it might work.

Brody had the Transplant on his birthday 21/7/10 his big brother Luke was the bone Marrow donor. Luke is doing well now, and Brody is in isolation for a long time. Before Transplant Brody had to go through head and whole body radiation and also more very high chemotherapy.

Transplant day is called day 0, and so far we are up to day 11, where Brody has high temps, sores in his mouth and throat. Red itchy rash, diarrhoea and nausea. He doesn't eat or drink but is on feeds through a tube and other vitiams put through his cords. We wont know if Transplant worked for a while yet, but hopefully we get some good news soon. This has been a total of 11 months all up and still a long way to go............

Brody aslo had some more Potassium today as it is a very important mineral for the proper function of all cells, tissues and organs in the body. Its is crucial to heart function. He is still the same and temps have been 39.7. He had a big sleep today and watched some Tv.

A BIg HAPPY BIRTHDAY to my lovely and wonderful mum (Grandma). We love you heaps and Thank you for everything. xoxoxoxox