Day 29- Post Transplant

We saw the doctors today and they said hopefully yes after next week we will be able to leave the hospital. We will be in isolation for the whole 6 months at Grandma's house. Also found out that in another month Brody will have his first bone Marrow test, which is to see if the cancer has come back already. He will have two of these per month for the first year then one every two months for the second year.

The doctors also told me that the cords in his chest would approx be in for another 6 months to a year depending on how he goes. I found out that they gave him the steroids because his GVHD was getting worse, and then it would have been moderate, so they thought they would get in early. The GVHD can come back up to 3 times or fade in and out like it has been. So then he will be put on steroids again. They are still slowly taking him off them, which can take up to another 4 weeks before he is fully of them. So lets hope it doesn't come back as he is always hungry and put on alot of weight with them. The GVHD wont always be in him, hopefully the steroids will treat it.

Before we go home i will also be seeing the seizure doctor for his seizure medications and results from the EEG. At this stage the doctors have told me that he will still be on the medications.

I am feeling a bit scared to leave the hospital as it has become our safety net. So many more complications can happen while Brody is out of hospital, but i think i am prepared and know what to do if those complications happen. AS i know the signs and have watched the nurses. Its funny a nurse told me today that i would make a great nurse. I think i could too, maybe i might look into it!

The doctors today praised me on the hard work i have done with Brody as they saw the old Brody come out today as he hit and kicked them. I put him in Time out and made him say sorry and when he stopped yelling he could come back out and we tried again. Every thing then went smooth. They said that some parents because their child is sick wont go cross on them and they turn out spoilt. I told them, Brody needs that routine of what happens when he does something wrong as then all our hard work will be lost. They thought it was great how i have prepared him for everything. But i told them thank you but if i didn't have everyone from ABI helping me too, i would have been lost. So thanks ABI our work has been noticed.

WE still have a long way to go, and he isn't out of the woods yet but we are in for this fight and we will work hard to fight it. Thank you xox