Brody and i again spent the day in hospital, with no day pass again. Brody has got a fungal infection in his mouth, runny nose, cough and high temps. He is still playing and having fun, but he is just a little bit more quieter and has started not to eat much today.
I had a lovely day in the hospital with my mum, dad and Brody's brother LUke. Luke had flown in today from Queensland. Brody and i were so excited to see him.
We also had a big sleep and didn't do much in the afternoon as we have to get ready for our big week of doctor's, tests and normal routine stuff.
ABI and I are trying to get Brody used to things he does not like such as the nose tube, oxygen mask, we are taking little steps every day to get him used to it all. So when its time for transplant he will wear these things. At the moment Brody has the oxygen next to him when he is asleep, if he wakes up he then gets it and throws it away. Then i have to get up and put it back when he is sound asleep again. So i don't get much sleep through the night or day with putting oxygen mask next to him, giving him meds, nurses coming in fixing machines, changing his nappy and others making noises. Its a very draining experience!!
Brody has done really well with ABI and is improving every day with his behaviour. Its really nice for a change that i don't have to say sorry or explain Brody's behaviour to people. The nurses and doctors are also understanding him and give me time to work with him to then make their job easier. Thank you ABI for all your hard work and time.
Sorry again to everyone trying to contact me or wanting to catch up, but for the next few months i will have no time for anything except beaning here with Brody and Luke. I have so much going around in my head that its very hard to even know what day it is and also sometimes i don't even want to talk about what is happening. As you can understand, you might not want to talk about your work all the time. Well its the same for me, i get tired of the hospital and don't want to think about it or talk about it. Brody and I just sometimes want peace from it all. Thanks heaps for understanding that we need space at this time. xoxoox
Hope all the MOther's out there had a great day and we wish you all the best. xoxox
