Saturday, July 17, 2010

Day 2 of Thiotepa

We ended up having 5 showers a day, as a nurse come in last night and told us that she had seen many nasty burns from this chemo and to be safe then sorrow we were up at 2.00am to have a shower. Brody didn't like it one bit, and stood there crying, nearly brought tears to my eyes but i have to be strong for him. My brave little man then went straight back to sleep.

His skin is very dry and has red marks on his arms, his skin feels quiet warm. We have started to use a oil wash to wash him down with it

Brody was a bit aggressive today as he bite me, hit me and just been destructive. He sometimes gets like this when he is not feeling well, as he can not tell us, so he lashes out instead.

The doctors came in today and told me that his white blood cells are now at zero, so we can expect high temps and mouth sores the next couple of days. We still have to give him the 5 showers as well for two more days.

Brody starts the new heavy dose chemo tomorrow called Cyclophosphamide. It will run for two days. So we are starting to get closer and closer to the big day. But i am not so much worried about the transplant as its just like a blood transfusion, its the weeks after that everything can happen, as his body is then working over time to heal itself from all the chemo and radiation.

Luke will be down tomorrow as he has a clinic visit on MOnday, he will be staying with Grandma and on the transplant day he will have a bed at the hospital as well. Luke is my other superhero as he is giving the best gift ever and is so brave to do this.