Frustrated Day!

Brody's morning was pretty normal, laying about in the bed, watching TV. He is still not eating much or drinking alot. I did lots of activities with him today, school readiness stuff and playdough. We had a good time just the two of us, with no one popping in.

Brody's blood levels were low and he needed to have a blood tranfusion. The amount of different people's blood that has gone inside him, makes him not blood related to me now! HA, ha,ha. I want to take this chance to say thank you for donating your blood to the blood banks, as Brody would not make it through if he didn't have it. So big thanks to everyone! But remember to donate when you can, as there are more people that need blood, plasma and platelets.

The afternoon was frusstrating as the nurse had to change his dressing, I had to hold him down again. One day i will get someone to film this experience, so you can see what he is going through. Then we had Mary-Anne from Aspect visit us and Megan from the hospital OT. Brody wanted them to both leave, but mummy had to talk to them about the best ways to help him. By this time he was worn out and very tired. He feel asleep.

Then Joel his father turn up, but Brody would not wake, i took this time to go out of the room for a little break, didnt do anything but sat outside and talked to a Father with a 13 year old son with cancer too. We had a good chat! I come back in and Brody was awake watching movies with his dad. Then the nurses told us we had to move rooms, so i had to move all our stuff to another room. Joel and i then took Brody for a little walk to get some exercise, we stopped off at the starlight room to play games. Didnt stay long as Brody was still very drained, but hypo at the same time because his father was here.

Brody spent the next lot of hours watching movies again and getting ready to sleep. He is telling me that he dosent want this any more, no more sharpies, no more cords and no more cleaning out his mouth. How do you explain to a child with Autism that he has to keep having these things? Its very hard and frustrating.