Day 33- POst transplant

Today Brody had a normal blood test to check a level of medications and he also had a sharpie to test the chemo level again. Turn out it was too low so needs to take three tablets twice a day for that one. All up 12 medications twice a day, some i put down his nose tube and others need to be tablets. I would be know good if i was sick, as i still cant swallow tablets.

The doctors come around and the young doctor told me that his x-ray was worse then before, (What ever that means). But the real doctor told me that they are doing a CT scan on Wednesday and they will bring the Bone Marrow test forward early as well. As this stage its not that good going under too many times. So they will do both at the same time.

They said might be able to go at the end of the week, but i wont hold my breath as things always change and if they find something with the CT scan we will be here longer.

Brody is not himself as he is very quiet and not doing to much, he is always tired and his breathing seems different. He still has sore legs and finds it hard to walk. But he got out of bed for a little while while we did school work and drawing.

The doctors have also changed his feeds, as he is eating lots, but have told me that all kids go home with the feeds, so they have ordered a pump, bags and feeds for us when we are ready to take them home. The nurses make things look so easy when they do the feeds, but i still need lots of practise but i am nearly there.