Valentine's Day

Love my kisses and cuddles. I dont get them alot as Brody only gives them on his terms and when he feels up to it. But i have had plenty today. Hope every one had a great day for Valentine's Day.

Brody and I again stayed at home and did things around the house. We ended up having a sleep today. Yeah!!! My poor Valentine was sick and had to go home as he couldnt be around us but

Grandma, Brody and me had a foot spa and i did my nails. It was good to just sit back and do something relaxing and something for your self. As you dont get time to do things for your self, like a hair cut, foot spa and nails, so most of the time you feel like crap about your self. So now i feel that little tiny bit better.

Wishing everyone a HAPPY VALENTINE'S DAY. xxxxxx

Rainy Weekend!

What a dull, rainy weekend! Did not do much at all except lay about the house watching movies, playing playstation and playing games. Brody is not allowed to go any where were there is alot of people or other children, due to all the bugs and germs. This then stops us from been able to go to the movies, shops, park, play centres and other things, so then the only thing left to do is stay at home again.

Brody is still eating lots of different types of food, which is good. All he would eat in hospital was yoghurt or custard and icy poles. Now he is eating cheese, Jatz, apples, grapes, chips, meat, pizza and he wants more and more pizza. Think i will own the pizza shop by the time Brody is finished.

Brody has still decided not to have a day sleep, but still sleeps all night cuddled up with teddy and mummy. Love how he wraps his arm around me and tells me to go to sleep!

Other wise its been a stressful weekend, worried about Brody's brother Luke, Brody's Great grandfather and Brody's grandmother. Life just seems to get better and better and i am about to loose my mind.

Check Up!

Brody enjoys seeing Domenic and Ethan before grandma takes them to school. Brody really loves his counsins and had fun playing playstation with them.

Went to Hospital first thing today. They took bloods out of his cords and then we waitied, while Brody run off again and again. (must be feeling better). Then we saw the Doctor, she told us that because his levels were good, they will bring the chemo forward to this tuesday. There goes our 2 weeks rest. Lucky we dont plan any thing! He will be having a bone marrow and lumber puncher, with chemo put into the spine. Also having chemo on the drip into his cords, so its a couple days stay again.

Brody also had another nose suction, it was the worse one to date. As the silly nurse told him before i could get a hold of him, so then he was hitting and kicking everyone. I finally got him down on the bed and we held him down. It makes you feel like a terrible mother and you just want to run and cry, but it has to be down. I always end it by giving him a cuddle, while he is still telling me off.

We also saw the hospitals OT and she is getting things ready to help us out, by making visuals of what Brody has to do in certain areas and situations, and also getting help with a speech person from the hospital. As we have had problems with one lady that does speech. She told me they dont have the facilities for an Austium child. WHAT! I got on my high horse and had a good old argument. You would off been proud of me, sticking it up her! She still caused me alot of stress. So OT lady is going to find another speech person from the hospital, as she also had problems with her.

Brody is still eating lots and lots and drinking all his water. He didnt have a sleep again today, he is alot more active as well, must be because of his levels beening good.

Games Day!

Brody is coming along so much better with his eating and drinking. He ate about 30 Jatz with butter, grapes and lots of water. We had a day fill with playing playstation 1, playdough, cutting and watching DVD's.

Again he loved having Dom and Ethan here before school, as they all sat up at the table and ate breakfast. My sisters husband drops them off at grandma's so he can go to work and grandma takes them to school. As some of you know i lost my sister a year and half ago to a rare cancer.
We all miss her very much!

We have to go back to hospital tommorrow to check bloods and a check up. Then we get a little break before time again in hospital for a bone marrow operation(this is to check if chemo is starting to work) and intense chemo. So Brody and i will enjoy our time away from the jail house while we can. Other wise we are trying to start other services for his Autisum, so he dosent go backwards and keeps moving forwards. Thanks to Chantelle, i have a few contacts but as she and i have found it is very hard to get people to come to hospital or the home. I try my best at teaching him (as a Early childhood teacher) but he wont listen to mummy. What child does?

Thank you again to all those people that have put money into Brody's fund, as this will help so much. As you can imagine i still have the same bills i was working for and now more. So thanks again. Even the little bits go a long way. LOve you all xxxxxx

Lazy Day!

Today Brody and I had a very lazy day, sleeping and sleeping and more sleeping. He played games on Luke's old playstation and went fishing in a bowl full of water. Brody really enjoyed seeing his cousins Domenic and Ethan this morning before grandma took them to school. He wanted to go with them. As he really misses his school and friends back up at Forster.

Brody is eating alot better today and drinking more too. He is still less active then he use to be and has lost around 5kilos. His nose is still running alot, so hoping nothing will come back. But he is still his happy self.

My friends Jess & Jai popped in on their way home back to forster. Jess made me a beautiful scrapbook with all my photos in it. What a wonderful gift to give me, it nearly made me cry. Thanks Jess and Jai. xxxx

Day 13, Back to Grandma's

Brody got the news that we could go home and he was jumping all around the room like a hypo kanagroo. He told the nurses to take off his cords and let him out. But we had to stay around to wait for grandpa to pick us up and fill the paper work out and make his appoinment for friday. So it wasnt till after lunch we got home. Was a bit scary, as i now have to think what i have to do in the real world and as we have been isolated for so long the real world scares you just a bit. It aslo makes you sad as you look around and see everyone doing their normal day to day things and you just wish we could do that too.

The Doc's dont still know what caused all of his problems, as it could just have been from the meds or the chest is the number 1 thing they are thinking. We just have to keep an eye on him and take him back if any thing happens. His leg is alot better but still a bit stiff. I have to continue with excersises for him.

Got home to grandma's and Brody had a sleep, i tried but had hospital people still ringing me. If i dont every answer my phone it is because i am busy or trying to get sleep, so please just leave a message and i will try ring you back.

All Brody wanted was PIZZA as some of you know he has an obession about pizza. It was the first time he has eaten normal food for 13 days. Most of the time he has only wanted custard and yoghurt. I was so happy that he ate something more solid. (see pictures above).

Day 12

We started packing up to go home, as the Doc on the weekend said Brody was doing well and he would be able to go home. That changed as the Doc's had their little team meeting outside the room. Then they dont even come in and tell you what is going on. I had to ask Nurse to find out for me. Next time, i am thinking of standing out there too. Any way, yes we had to stay again. Brody was not happy about that and again would not do any thing the nurses ask. Brody is eating better and going for longer walks now, still no temps and still of the oxgyen. Doc's just want to keep him on meds a bit longer and watch him, as they still have no idea where the infection started. They think it could be the chest but are really unsure. Better to be safe then sorry. So unknown when we will be able to go home.
Took Brody to starlight room where he played the playstation. He really enjoys the games. Only stayed a little bit as his machine started to beep. We played cars and Ben 10, watched DVD's and had a very long sleep. Its a lonely life but we have each other.

Again had more people comment on Chantelle's "My Story for special children", see advert in side coloum. Its the best thing as it is helping people really know Brody.