Hearing test!!

Today we went to the hospital to get a script for meds and waited an hour and a half to just see a doctor. Then the doctor said we could have just rang and come in and picked up the script!! But i told the lady at the desk it was just for a script and we still had to wait. What a joke!!!! Really thinking its because the doctors don't want to see Brody because of his behaviour. As they find it to hard, so they pass him on and hope that someone else see's him.

We then went to the hearing department and all his hearing was 100%, which i knew from a past hearing test when i was trying to find out what was wrong with him. So good news that the chemo hasn't effect his ears.

Brody never talks to strangers, but today decided to ask a lady with blonde hair and she was all dress up with her high boots on, her name. What a flirt my child is turning out to be!!! LOL.

I heard from Luke and he is doing ok now, his eyes don't hurt anymore and he just has a mark on his arm. I am so glad it wasn't too bad. Luke is doing his exams at the moment and is having fun with his friends.

We will be having a quite weekend at home with Bill and Grandma and Grandpa, then back to all the weekly stuff of ABI and Hospital visits Monday and Tuesday. So keep a look out for next weeks blog to find out all the gossip on preparing Brody for transplant and the transplant it self.

Hope everyone has a good weekend!!! xoxox

At last!!!

Normal routine work with Brody today and then just playing and watching TV. The weather here is very cold and light showers today, so we couldn't even go out the back for a run.

Hospital rang me today and Brody is going to have another CT scan next week and i will be meeting with the transplant team on MOnday to find out the in's and out's. Yeah!!!! I cant wait to find out what will be happen so i can start preparing him for it. So keep watching for next MOndays or Tuesdays blog entry for more information.

Luke will be having some of his tests up at the children's hospital at Brisbane, so wont need to come down this time, i am a bit sad about it as would have loved to seen him again. But cant wait till we see him again next time.

Tomorrow Bill is coming down for the weekend, as Brody cant wait to see him. Its been very hard not having our little family together like it used to be, as Bill still has to work and it costs alot to travel in his car so he only comes every second weekend. He stays at his sister's house while he is down here, so we don't get much time together. So it will be good to see him again.

Today we had Chris again from Autism behaviour intervention to do some behaviour work with Brody. Before ABI started i could not get Brody to do any type of school work or even get him to sit at a table. But now he is doing so well, sitting at the table and completing some school work. They also help with Hospital procurers too, like putting a nose tube on his face or in his nose, Brody now lets us put the cord in his nose and taped on his face. Which will help him so much when it comes to having to have one on his face.

ABI will not be coming after a couple of weeks, but we have now received emergency service again for after transplant to help Brody transition back into normal life, which is going to be a great help, as he will need to be toilet trained, socialized back in with children and follow new routines of home. Thank you so much to ABI for all there help.xoxox

Brody face isn't so red today so what ever it was, it seems to be going. He has ran around the house playing chasing and hide-n-seek with us. He is a very wild boy and keeping me on my toes. He also packed his back pack and told me he was going to Nabaic. He then went out the front door and up the drive. I feel so sorry for him as he really wants to have his life back at Nabaic. He misses his chickens, dog, horse and his spaceship bedroom. I too, wish that we have a life as it gets very hard. Unless you have experiences this you would never know how hard it is.

Luke is doing ok, he is laughing about his accident yesterday and now riding his bike again. So i don't think it was to bad, but it still would of hurt. Ouch!!!!

Worried!!!

Brody had his behaviour activities to do today with Chris from ABI. He went really well this morning, until right at the end where he had to go into timeout for hitting. When Chris was leaving he told him he will see him tomorrow and that he loved him. How cute!!!

We also had Dianne, the nurse from the hospital come in and flush Brody's cords to give them a weekly clean. She was in and out with no worries. It was so much better than going in for hours and waiting around.

One of the doctor's rang us to tell me to increase his anti -biotic as his anti-biotic level was too low. But still no news into whats happening to get ready for transplant. On Friday we will be going in for a hearing test and to get some more meds, so hopefully i will find out something or i will chase it up, as i will go see the main doctor and let her know i haven't heard anything yet.

Brody is doing really well that he has become hypo like he used to be and eating lots of food. He has had a red face and ears the last couple of days, but his temperature has been fine and there is no other signs of things happening, so i don't know why he has a red face. Grandma said that sometimes meds can make you have a red face, so i am hoping that is what it is.

Oh! I am now worried about Luke as he burnt himself and went to hospital today. He is ok and a friend is staying with him. He has to go back tomorrow to checked out but he should be ok. How i wish he would come back home. Brody and i miss him badly.

Long Weekend!!!

Brody is doing really well as his levels are good and has started to become the old Brody. His nose hasn't been so runny this week and he is so much more active again. I haven't had him outside in this cold air as winter is the worse time for a transplant as there are so many more colds/flu and infections going around. This is the last thing we need as if Brody gets anything it will delay transplant again.

We were thinking of going back to Nabaic this weekend to spend some special time with Bill and Brody keeps asking to go back home, but poor Bill got a ear and chest infection and its just to cold up there to take Brody out. We will have many weekends to go back home after all this so another week away want hurt. Hopefully Bill gets better soon, as Brody wants pizza.

So for the rest of the weekend we are staying in and playing lots of games, sewing, normal routine work (as that happens every day), cooking, Wii, Ds and lots of indoor fun things. Hope everyone else has a great weekend.

Tribute to Sonya

Happy Birthday!!!!! 11/6/70 to 14/7/2008

Today has been a very sad day, as we celebrate Brody's Aunty Sonya's 40th Birthday. She was a wonderful sister to me and a caring Aunty to Brody and LUke. Sonya had just built a wonderful life with her husband David and twin boys Domenic and Ethan, when her life was struck down with a rare cancer. She tried to fight right to the end. We have so many good memories, but one memory that will live in my mind forever is when i nearly lost her 2 days before she passed. As she had what looked like a fit on me, and i had to hold her up while yelling out to the nurses. They told me to call the family, as i believe we did lose her that day, but she came back after getting oxygen. It was the most scary thing i have every been through.

Sonya will be sadly missed by all, and we love her so much, she will always be in our hearts xxxxx

Sad and Quite day!

Brody and i did his behaviour work this morning, which he did really well at. He still needs lots of work but has improved so much. I am very proud of all the work he has done so far. I still believe that he will have trouble at school, and hoping he will get into the special unit again next year, as if he gets expelled from kindergarten because of his behaviour, it is not going to help him in the future.

We then watched a special friend (Chantelle) get a make over from the circle on channel 10. She deserved it so much as she has two children with Autism and still finds the time to help us out. Thanks Chantelle, and you looked gorgeous. xoxox

After lunch, we popped out to my sister's grave to place some flowers and wish her a happy 40th Birthday for tomorrow. Brody helped me through this as he said "You miss Aunty Sonya", i said Yes, but will see her when i go to heaven. He then said " i will miss you then mummy, but Bill will look after me so just go". I had to laugh inside myself as he wants to get rid of me all ready. But at least he stopped me from crying. I just wish my lovely sister was still here, as i miss her so much.
I really regret some things, and one is when Sonya was sick, and here she was trying to look after me as my life had just falling apart. I should have been there for her not consumed in my own stupid mistakes. But i cant change the past, so i will make sure the future is better, for me and my family.

We also said hello to pop while we visited Sonya, and Brody told pop to come back as we miss him. The things children say, but it did help hold the tears back. Since i was little my pop was a big part of our lives, as we lived with him when our Granny Grey died, and then when he married Nan, we used to play tennis every week with them. He was a part of our family in every way right to the end. WE love you pop xoxox