Today is the start of a new week, nothing much happening at all. Brody and i are getting sick and tired of waiting around for a normal life.
Its very hard to even know what to plan and as we don't know where we will be. Even if the cancer gets lower he is still at a very high risk that it could come back. So i guess after the isolation finishes, we start our normal life and hope that it wont change again, but if it does we then have to change our life around it again.
Need to really think about work for next year or study again, while Brody goes to school, we will still have many visits to the hospital, so cant do full time work yet. Wish i had a crystal ball!!!
Brody is doing really well, he has no signs of anything. He is still on alot of medications, morning and night and the steroids are still helping him eat lots, as he had 5 slices of toast for breakfast. lol
He has a sore leg and limps around the house, the doctors told me that the steroids can cause this. But other wise he is having lots of fun with Ethan this week, as he has time off school for his little operation. They are both playing DSI's and watching movies.
So nothing happening till Friday when we go to clinic, Its funny looking forward to getting out of the house to go to the hospital, that is sad!!!
Monday, October 25, 2010
Friday, October 22, 2010
Clinic Visit!
Back again to the clinic today. We had a great morning as we meet up with one of our friends JO and Ben and had a great little chat. We laugh, as we call our catch ups having coffee like normal mum's do. hehehe.
Everything also went really fast today, it was strange to get in there and get out quick. But nothing to tell, as the results are still not back yet. His blood levels are good too, so no transfusions. The doctor is please how good he is going, that she wants us back there next Friday. So no results till then.
Brody had fun too, as we dropped more DVD's of at Variety ward and saw all our lovely nurses. Also Make a wish foundation was there handing out balloons, badges and things, which Brody had to get.
Then we come back home and watched some movies and played DSI. So nothing much is happening, just the usual stuff. Which i am happy that we have keep so strict with what we have to do for isolation, as he hasn't caught any thing. I know others that have got so much, like whooping cough etc. So i am glad that we are very careful in what and how i care for Brody.
But after the isolation period Brody and i will be parting hard, as we have been couped up for a year now, and starting to feel the pinch, but holding on to the thoughts of getting out and about.
Everything also went really fast today, it was strange to get in there and get out quick. But nothing to tell, as the results are still not back yet. His blood levels are good too, so no transfusions. The doctor is please how good he is going, that she wants us back there next Friday. So no results till then.
Brody had fun too, as we dropped more DVD's of at Variety ward and saw all our lovely nurses. Also Make a wish foundation was there handing out balloons, badges and things, which Brody had to get.
Then we come back home and watched some movies and played DSI. So nothing much is happening, just the usual stuff. Which i am happy that we have keep so strict with what we have to do for isolation, as he hasn't caught any thing. I know others that have got so much, like whooping cough etc. So i am glad that we are very careful in what and how i care for Brody.
But after the isolation period Brody and i will be parting hard, as we have been couped up for a year now, and starting to feel the pinch, but holding on to the thoughts of getting out and about.
Wednesday, October 20, 2010
Clinic Visit and teacher Visit!!
Brody and i went off to clinic today thinking he will need platelets. We got there and did his bloods and again waited and waited. The doctors had forgot we were booked in today. Then all that happened was we will see you Friday. It was a waste of time. Brody's platelets were still the same as MOnday, so didn't need them today. Grrrr....
The doctors just dont understand how hard it is to keep going back and forwards to hospital. Half the time Brody wont get in the car and then we have to wait a long time with Brody not understanding what waiting is about. Its not easy for any child!
We got back home and had a meeting with the teacher, that chooses what school Brody will attend next year. We fill out all the paper work and find out what support class he will go into and school. Funny thing, she told us Jasper RD public school could be one of the schools. Its funny as thats the school i went to and Luke started at when he was little.
So back at clinic on FRiday, and hopefully we will get the results.
The doctors just dont understand how hard it is to keep going back and forwards to hospital. Half the time Brody wont get in the car and then we have to wait a long time with Brody not understanding what waiting is about. Its not easy for any child!
We got back home and had a meeting with the teacher, that chooses what school Brody will attend next year. We fill out all the paper work and find out what support class he will go into and school. Funny thing, she told us Jasper RD public school could be one of the schools. Its funny as thats the school i went to and Luke started at when he was little.
So back at clinic on FRiday, and hopefully we will get the results.
Monday, October 18, 2010
Bone Marrow OP!
Brody and i went of to clinic this morning, nice an early as we had to be there by 7.30am. We then waited and waited and then saw the doctor.
Doctor told us we were right to do the bone marrow op today, but had to come back on Wednesday for platelet transfusion.
Brody went into to the operation room and had the bone marrow and i went out for a smoke, as we ended up waiting 3 hrs, and when Brody is hungry and still on steroids he gets really angry. AS he was screaming and kicking me. It was a hard morning for us both.
Every thing went well, hopefully little results will be back on Wednesday and the major results will be back at the end of the week or next week.
Brody is still going really well, as he is eating lots and his energy levels are starting to come back. We also popped in and saw our lovely nurses at Variety. A huge Thank you to them all for having so much time for us and helping us in all the ways they can. WE love you all. xoxo
Doctor told us we were right to do the bone marrow op today, but had to come back on Wednesday for platelet transfusion.
Brody went into to the operation room and had the bone marrow and i went out for a smoke, as we ended up waiting 3 hrs, and when Brody is hungry and still on steroids he gets really angry. AS he was screaming and kicking me. It was a hard morning for us both.
Every thing went well, hopefully little results will be back on Wednesday and the major results will be back at the end of the week or next week.
Brody is still going really well, as he is eating lots and his energy levels are starting to come back. We also popped in and saw our lovely nurses at Variety. A huge Thank you to them all for having so much time for us and helping us in all the ways they can. WE love you all. xoxo
Friday, October 15, 2010
Levels!!!
We again went to the clinic today to check Brody's blood levels. While we waited in the hall way, the two doctor clowns come and did lots of funny things. Brody got it photo taken with them.
We also popped up to see our friends from Variety Ward. A happy Birthday to Sarah and a huge Congratulations to Matt for popping the question to his girlfriend. Wonderful news!!!
The doctor's checked his bloods and said they were fine and hopefully we can start his new medication again next week. Bone Marrow test on Monday. I am feeling a little bit nervous but praying for the best result, as he has come so far already. I also cant let it affect me, as there will be many of bone marrow tests to come, where the cancer could get worse. Just take each day as it comes.
Not much happening on the weekend so next blog will be after MOnday. Thanks again to all my family and friends. xoxoxo
We also popped up to see our friends from Variety Ward. A happy Birthday to Sarah and a huge Congratulations to Matt for popping the question to his girlfriend. Wonderful news!!!
The doctor's checked his bloods and said they were fine and hopefully we can start his new medication again next week. Bone Marrow test on Monday. I am feeling a little bit nervous but praying for the best result, as he has come so far already. I also cant let it affect me, as there will be many of bone marrow tests to come, where the cancer could get worse. Just take each day as it comes.
Not much happening on the weekend so next blog will be after MOnday. Thanks again to all my family and friends. xoxoxo
Thursday, October 14, 2010
Levels to high!!
Today was a normal day at home, but i did get a chance to pop up to the bank and shop to get a few things. So not used to going to the shops.
The doctor rang me today, to tell me to stop the new medications as Brody's levels were to high from it and we have to go to clinic on Friday to check levels and him out to make sure he will be alright over the weekend.
Brody otherwise is fine, he kept me awake all night last night, as he woke up and couldn't go back to sleep. He is eating chicken soup and sometimes other different types of food.
A Huge Thank you to my Aunty Dianne and Uncle Peter for there wonderful gift. xoxox
Thank you to everyone that has help us, as now my Bills have gone and your wonderful gifts will help us get through the next year. We are very grateful and thank you all from the bottom of our hearts. xoxoxo
The doctor rang me today, to tell me to stop the new medications as Brody's levels were to high from it and we have to go to clinic on Friday to check levels and him out to make sure he will be alright over the weekend.
Brody otherwise is fine, he kept me awake all night last night, as he woke up and couldn't go back to sleep. He is eating chicken soup and sometimes other different types of food.
A Huge Thank you to my Aunty Dianne and Uncle Peter for there wonderful gift. xoxox
Thank you to everyone that has help us, as now my Bills have gone and your wonderful gifts will help us get through the next year. We are very grateful and thank you all from the bottom of our hearts. xoxoxo
Wednesday, October 13, 2010
Clinic Check up!!
Nothing much to report, as Brody is doing really well at the moment. (knock on wood). He is eating lots and enjoying staying at home.
We did blood tests today, which is all good, Doctors are slowly taking him off the steroids and still checking levels for the new medications.
Monday is the next bone marrow test, and results will hopefully be back on the Friday when we visit on the Friday.
The school teacher come out on Tuesday and hopefully we will get to start thinking about where to enrol Brody for next year. ABI will also be starting next week. So its all full swing again back at home.
We did blood tests today, which is all good, Doctors are slowly taking him off the steroids and still checking levels for the new medications.
Monday is the next bone marrow test, and results will hopefully be back on the Friday when we visit on the Friday.
The school teacher come out on Tuesday and hopefully we will get to start thinking about where to enrol Brody for next year. ABI will also be starting next week. So its all full swing again back at home.
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