Yesterday the doctor's come in and Brody was sound asleep, they told us that the kidney ultra-sound was normal and we could go home. I wasn't ready for that! Yeah!! I let Brody sleep while i packed every thing up and then i woke him up and he was soooo excited.
Today we had to be a clinic by 9.00am, so it was rush, rush this morning. Brody got a sharpie and they took bloods out of his cords to check all the levels.
We then saw the doctor and she told us that the cancer cells are still not at a level were they would like, so they will reduce some of his medications to give Luke's cells the chance to take over and destroy the cells. This can cause his GVHD to come back, if it comes back mild they wont treat it but if it comes back worse they will treat it again.
This is not the end and the doctor's still have confidence in what they are doing, to get it to the right level. They told me they will tell us if it is bad as they too would want Brody to enjoy his life, so we are not there yet. So dont give up hope or say sorry. Brody has always and will be at very high risk for the cancer to come back, therefore this is why we will be in and out for another year.
Brody otherwise ok, he walks very slow and is always tried, but enjoys playing with his DS and watching his movies. Also getting Grandma to cook, cook, cook.
Thanks again to everyone, will write another entry on Monday after our day at clinic again. Hope every one has a great Father's Day!!!! Happy Fathers Day to all xoxoxo
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