Brody's GVHD is coming back like a steam train. He is very itchy and is having cold shivers. This is a good thing but we don't wont it to get to bad.
Doctors said today that they will do the PET scan Thursday and see what is going on, then they might put him on a new tablet that helps with the GVHD. But all this work does not change his very high risk of the cancer coming back.
The silly doctor's also told the nurse we could go on a gate pass today. I had to laugh as the nurse told me, as i said to her, what about his TPN and Potassium? As you cant just stop these, you have to slowly come off them. The nurse said yes that's right, she went and doubled checked with the doctors and come back saying No gate pass! LOL I should be a doctor now. But worse part is, it doesn't give you much trust in your doctors when they forget that they were the ones that put him on the TPN and Potassium. But everyone forgets and makes mistakes, as i think they were thinking because they have stopped the anti biotic he could go out today.
Not much else happening, is all a big waiting game and cant plan anything. You all should look at your lives and be grateful for all the little and big things, as i am very grateful for everything as this experience has taught me so much about life.
Tuesday, September 28, 2010
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