Today Brody and i went set of to clinic this morning at 7.00am, as he needs to have his 9hr treatment for his poo bug, expect i could give him the before medication and the after medication so we wouldn't have to stay the whole 9 hours.
But we did as Brody's temp started to go up again and it hit 38.0 this afternoon, so they are keeping us in again, for more medications and to watch his temps. Grrr...
Brody was upset, as all he wanted to do was go home again to Grandma's. A least we got to have 4 days home, which was lovely having our own bed, home cooking and just walking around the house and doing what we wanted to do.
Every day is still so routine as Brody eats breakfast, i take about an hour to prepare his medications and then give them to him in his nose tube. Also top him up with some water.
The evenings are the same as he has dinner, then i prepare the same medications and give him his bath and then hook him up for bed to the pump to keep up the water as he needs to have a litre a day of fluids. Some days its so hard to get him to drink 500ml.
So most of our days are filled with doing stuff, its been a long hard year and i am hoping the future will get better,
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