Normal week at home!!

Haven't done much this week, Normal routine stuff!!! Brody is eating more and enjoys playing with his cousins.

This video is off Brody and Grandpa playing his Bakugan's. He really enjoys playing with them and its been one of his obsession for awhile. Brody gets a bit ruff with grandpa sometimes, which we then have to take them off him. Thank you to everyone who has given Brody the Bakugan's as his case is now full. xoxoxo.

Good News at the clinic!!!

Brody's check up went well today, we didn't have to wait long and he was really well behaved. The doctor told us that from his lung biopsy they found that his pneumonia has cleared up and all it showed was that it is scarred. He will still need to be on meds to prevent it from coming back.

So good news again today, he still has that runny nose and a wet cough and gets very tired as he has slept for over 3 hours today. But otherwise he is doing well and is happy.

Grandpa's Birthday!! and Good News!!!

Happy Birthday to Grandpa!!xoxoxo

We had a busy day getting ready for Grandpa's little party with Domenic, Ethan, Uncle Dave, Grandma, Grandpa, Brody and i.

First we had our normal routine of doing our activities, we watched some Tv and tried to have asleep, but Brody was to excited that his cousins were coming and he wiggle and giggled all over the place. I forgot to turn of my phone and again we had 3 phone calls. One which we have been waiting for for 8 months.

The important phone call was from the testing place that tested Brody to see if he carried a genetic gene P53, which they believe was on my side of the family, due to my sisters and other family member's that had cancer. My family and i have been living in anticipation, fearing the worse as more members could get cancer and Brody could develop a secondary cancer from the radiation. Its been a hard 8 months thinking about the results, but the phone call brought good news that Brody is not carring the cancer gene, therefore our family has just got a run of bad luck and hopefully there will be no one else.

Grandma pick the boys up from school and Brody was so excited, they all played the Wii and DS.

We had a beautiful birthday dinner and a great birthday cake, with sparklers, disco lights and loud voices singing Happy Birthday. Brody drew a great birthday card for Grandpa and helped him open his present.

Early to bed now as Brody is really tired and so am I, Big day at hospital tomorrow for check up and hopefully good news about Brody's lungs. Fingers crossed xxxx

Home sweet Home!!!!

Back at Grandma's place and enjoying Grandma's home cooking, big bed, room to move, tickle times, long showers and all the day to day things. Its really nice to be out of hospital, but it really worries me how Brody and I will cope with beaning in isolation for up to 8 weeks?????

Brody is still doing really well from his lung biopsy and taking his tablets morning and night. He still has day sleeps every day and ate pizza and tonight had chicken and bun rolls, yummy!!!

Its Grandpa's Birthday tomorrow and Brody is looking forward to seeing his cousins and having a little party for Grandpa. Brody's going to make a big birthday card for Grandpa.

Thank you to Joshua, Zac and Holly for the bumble bee, power puff girls and the leap pad learning tool, as Brody has had so much fun with them. xoxoxox

Back to hospital on Tuesday for check up and get results from lung biopsy and see the occupational therapist for more ideas on how to help Brody.

Lung Biopsy!!!

Every thing went really well with the lung Biopsy today, the nurses in recovery said that he might be in a bit of pain and that the doctors can give him a strong pain relief or panadol. But Brody didn't even know what happen until several hours later, when he noticed the bandaide on his chest and the ink marks where the doctors drew lines. Therefore his pain threshold is still quite strong.

They have given us the ok to go home tomorrow morning, so we are busy packing all our stuff up again tonight. Yeah!!! Cant wait for a nice bed, home cooking and the rest.

We had a nice visit from a old school friend that i haven't seen in 20 years. It was a great visit, thanks Kylie. xoxoxo

Yeah!!! Might Go home this weekend.

Very busy couple of days, with Blood and platelet transfusions, meetings, tests and people coming in and out. Some days it feels like a circus, with so many different hospital people coming. There is no privacy or much time to just be by yourself. So when we get go home we just cant wait to be left alone by everyone. The funny thing is, even though you have all these people coming in, you still feel alone, and i think its because Brody and i are going through this battle alone, its not their battle.

Brody had a bone scan yesterday and today he had to have a finger prick blood test, which he wanted me to go first to see how brave i was. LOL. It didn't help, i had to hold him down. He has had this before and went really well, but i think he feels alot more now that his body has gone through so much, its become sensitive.

I had a meeting about LUke with Transplant team, but didn't find out anything except Brody's transplant will now be early July. 3 weeks before transplant we will be in isolation which means no visitors for this time and the time during transplant and 4 weeks after transplant. So it will be a very hard time for both of us.

Brody has his lung test tomorrow and if he is well enough after it, they are letting us home and Brody will go on tablets for his infection, instead of the drip. Its great news as we have been here for two weeks now, and need to have time at home before transplant starts. We will still be in for more test and check ups, but a least we can be home and do this we want. Brody aslo has a hearing test tomorrow, so another busy day, really warn out this week, its been the busiest week of them all.

Sorry the video is on the side. xoxoxox

Busy week.

So far its been a very busy and tiring week, some days its hard to even think or walk around, but i just think of Brody and what he is going through and push myself on.

Monday we had the lovely Chris from ABI come out and then we tried to have a sleep, but this time i left my phone on as i was waiting for an important phone call and everyone rang, its always the way, couldn't believe it there was about 5 calls. So no sleep for me, which was hard as the nurse we had for the nights kept waking me up as she would close the door in a loud manner, or didn't fix the machine right, so it would go off all the time. So most nights i finally fell asleep after 1.00am. So i needed that sleep on Monday. Oh well!!

Monday night i slept like a rock, as we had a different nurse and every thing ran perfect!!! Yeah, but still tired.

Today again we had Chris from Abi do his stuff with Brody, as i am so proud of him, he is wearing the nose tube for 5mins now. This is small steps but he is getting so close.
We had the school teacher pop in for 5mins and the music lady Bonnie. We also had the doctors pop in.

The latest news is that Brody's infection is a fungal infection in his lungs, on Friday he will be having a lung biopsy to determine what type of fungal it is, so they can treat with the right meds. This will also delay Transplant, so we are now looking at July. Hopefully once they get him on the right meds we will be able to go home(Grandma's) for a little while before they start him for preparation of the transplant.

Brody today had a back x-ray for one of his tests he needs to do before transplant, he will also have a bone test tomorrow and a hearing test on Friday as well. He also needs a platelet transfusion tomorrow. So far its been running backwards and forwards to different rooms in the hospital. Some days i wish they will leave us alone to rest or just do nothing.

I also have a meeting with transplant doctors for LUke and a meeting with play therapist on Thursday and also the leukaemia foundation is coming for a meeting. Hopefully i will get some rest in between all these things.

My lovely mum and dad have also popped in and brought a lovely chicken soup and bread rolls for us for dinner to warm us up. It was nice to have some of Grandma's home cooking. Thanks mum and dad. xoxooxox