Day 16, Post Transplant

Doctor's confirm that Brody has acute GVHD, but is mild, therefore he is a grade 1-2. They don't normally treat with steroids, as only moderate to server gets treated with steroids, but they believe that Brody GVHD will get worse if they didn't treat it with steroids now.

The infection on top of it is not good as steroid's love infections and help them develop more. So have to watch his infection closely.

They have also told us that there is new sell growth, but more likely its Luke's cells that are growing, but this wont be confirmed for another month or so. Therefore we have over another month until we know if the Transplant and engraftment went well.

For a while we will be still having ups and downs and still such a long way to go. I am trying to work out the next year, as we will have to stay down in Sydney for another year due to Brody needs Bone marrow test twice a month and also clinic visits, therefore it will be easier if we stay down here close to hospital, also if the cancer comes back within the 12 month period we will be back here again. But i need to work out school option's for Brody when he can start school again, as if he waits another year he will be further behind his peers. There is a school that i have thought about for a long time, even when Brody got diagnosed with Autism but it is very expensive, but i think he will really need it as he hasn't been in a normal situation for over 11 months and i believe he will need a least one to two years of more one to one teaching before he goes into main stream school. Its going to be a big issue, as if i don't do something now, he might miss out for next year. Stressed!!!!.

They started the steroids today, and already his rash looks so much better and his temps have gone down, which is the first time in weeks. He is still coughing and having running poos, but he is alot more happier in parts of the day and tired the other parts.

Thank you to the Cartoon Network for all the Ben 10 things, Brody loved them. Thanks to Grandma for washing them and cleaning them before Brody got them. xoxox