Bugger!!!! The steroids are making Brody's behaviour all over the place, feel like we are back at the start when he wouldn't do anything for anybody.
His rash has started to look better and he has had no temps. Doctors are pleased with him. Brodys cough is also driving him crazy. Doctors think that his cough could be related to his poo bug, but wont know until later from the nose test results.
Otherwise the weekends are always quiet and not much happening.
The pain doctors come around yesterday and told us they will start to reduce his morphine, but cant believe his level of pain. As children that have had good transplant have 3-5 mls of morphine all the time and children that have complications are on 5-6mls. Brody is still on 0.5mls all the time. They said he was the lowest they have ever had for a Transplant. !!!!
Told you all that he doesn't fell pain, which has been such a good thing for him, as he has gone through so much. But is a bad thing because it can hide problems and we don't know if something is really wrong with him.
Brody Rocks Fundraiser Event is on tonite at Tuncurry bowling club, The lovely Nicole and Sarah have done so much to raise funds for us. This will be so helpful as i have over 12, 000 in bills and all of the pension goes on the normal life bills. When i was working it was hard to pay things but now i am not working its been hell and stressful. So this money will help us pay the bills and help towards living another year down in Sydney and help a little for his school next year. But we will still have a long way to go as the school i want to get him into is over $20,000 a year, plus parents are asked to raise another $18, 000. Shit!!!!
We will see! I hope everyone has a good weekend, xoxoxo
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